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Dads small cell cancer

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User

Posted 22 Oct 2015 at 22:46

Paula

This is such a worry for you all and so awful for your dad. Let's hope a good rest will make him feel a little better. Thinking of you

Love Allison xxx

User

Posted 23 Oct 2015 at 10:03

On the other hand Paula, I love your dad's determination to carry on as normal and it is his spirit that has got him this far. I think there will come a time in the future when you look back at this and you will smile because it reminds you of your dad's guts and strength of character

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Oct 2015 at 11:34

Going to see him before work.Mum said he is "ok" and was eating a boiled egg.I am worried sick now he has lost so much weight but im hoping he has just had a funny turn and the weekend will be good for him and Mum xx

User

Posted 27 Oct 2015 at 21:57

dad seems in good spirits if a little pale and too tired to walk into town.He has blood tests this week to check for cancer progress.Thank you again for all your lovely replies xx Paula

User

Posted 28 Oct 2015 at 14:31

Hello Paula
I've been following your reports on your Dads progress and find it so inspirational.
You have an amazing father and everything to be proud of.
You're closeness to him shines through and I'm sure he is as proud of you as you are of him.

I wish you and your dad the very best and hope you have much more time together .

Paul

User

Posted 28 Oct 2015 at 15:56

Ahh thank you Paul.
Dad is a very strong man normally and if he isnt it is because he is really unwell.Shame that a man who has spent his life helping others through fostering and adoption has this blessed illness but im sure that is the same for many a good man on here.I love him to bits xx Paula

User

Posted 28 Oct 2015 at 19:42

Paula

I am absolutely certain your Dad is every bit as proud of you as you are of him.

I am so pleased your new employers have a totally different outlook and attitude, finally you can have the peace of mind to know that when your Dad and family need you it will not be an issue.

Your Dad is one tough guy both mentally and physically, he has been through so much and has to be the longest surviving Man I know of who has had the small cell variety of this horrid disease. I am sure a lot of that is down to his strength of character, determination and the love of such a wonderful family.

Best wishes as always

User

Posted 29 Oct 2015 at 00:06

Thinking of you and your dad, Paula. You have had a tough time with your lack of support at work. At least I was retired when coping with my father's illness.

Paul

Stay Calm And Carry On.

User

Posted 29 Oct 2015 at 21:53

mum said he had bone pain last night and she is trying to get him a wheelchair to get some fresh air without exhausting himself.Blood tests were taken to determine any more cancer cells.He has been resting since his funny turn (rare for Dad).Work can be a comfort of normality and fun as my mind would go into overdrive
.Mum is amazing really with no means of escape day or night from the effects on her of it all.She takes each day as it comes now without complaint.
Love to you all Paula xx

User

Posted 01 Nov 2015 at 12:02

Saw Dad he seemed ok.Mum is looking to hire a wheelchair as he cant walk far due to bad pelvic pain He hopes to get a blue badge although im not sure he should be driving and hasnt really only once to get a blood test,xx

User

Posted 01 Nov 2015 at 20:50

Hi Paula

Sorry to hear that dad Continues to be in pain. On the blue badge, it doesn't need to be him that drives, he just has to be in the car that uses it. My hubby doesn't drive anymore, too many drugs interfering with perception and exhaustion meaning that his reactions are too slow, I always use the badge when he is with me. Definitely get one ASAP.

Lots of love

Allison xxx

User

Posted 01 Nov 2015 at 22:25

Paula

With his condition, he should be fast tracked. My dad was. Unfortunately, he became too ill to use it.

Paul

Stay Calm And Carry On.

User

Posted 02 Nov 2015 at 07:21

That is my thinking too Paul.Dad didnt even want to be picked up by my brother and driven to their home for a meal and he loves going there.Today is blood test results so we should find out more.The main thing is he is in good spirits Paula xx

User

Posted 02 Nov 2015 at 17:12

dads been in bad pain.Gp said it is cancer in his spine causing it.His bloods are low so blood transfusion tuesday.

User

Posted 02 Nov 2015 at 17:58

Ah that's a shame Paula.

I sincerely hope that the blood transfusion gives your dad a bit of a boost

We can't control the winds - but we can adjust our sails

User

Posted 04 Nov 2015 at 15:16

Dads getting wheelchair thursday and seems to flip between getting about then being unable so occ therapist is organising stools and walker for him.Still not sure how things are going or wether this is the new normal or more deterioration but he manged a small meal yesterday. Week for week day by day is what we are doing.Love to everyone and thank you all for the replies Paula xx

User

Posted 04 Nov 2015 at 22:56

Nothing to add Paula but wanted to send a virtual hug, this is s hard for all of you.

Love Allison xxxx

User

Posted 05 Nov 2015 at 18:51

Hi Paula,
Thank you for sharing your story. It's heartbreaking. Your dad is very courageous man. He is blessed to have you!
My husband was diagnosed with small cell prostate cancer last month. His PCP misdiagnosed him, we lost 3 months without any treatment... There is no light at the end of the tunnel, so far.... There is not much information also about this kind of cancer and not many doctors who know how to treat it.
My dear husband is doing chemo now and eventually radiation. I have hard time to accept it, and I can't change anything, just be with him and help him.
God bless you and your father.
P.S. Please excuse me for any mistakes as English is my second language.

User

Posted 05 Nov 2015 at 19:05

Hello myhusbandwife and welcome

Just wanted to say sorry for your situation. Please don't feel it's necessary to apologise for your English, as long as we can work out what you want to know it's fine.

Yes Paula's dad is one very courageous man and Paula is a wonderfully supportive daughter.

If we as a group can offer you advice please ask, I'm sure we'll be able to follow what it is you want to know

We can't control the winds - but we can adjust our sails

User

Posted 05 Nov 2015 at 22:16

Myhusbandwife i am sorry you are both going through this and let my dear Dad give you both some hope.i found very little info 3 yrs ago and admit to needlessly worrying at times about the aggressive cancer,
Dad remarkably had chemo in 2012 by dec it had knocked the cancer back and lived a normal life with mum who also had stage 4 rare cancer until its return summer 2014.(we knew it couldnt be cured).
Treatment has come on leaps and bounds and i sincerley hope your husband has the excellent care that my lovely Dad has and that he also responds to the chemotherapy.
Something i wish i had known in 2012.I believe it is a measure of how much we love someone when we feel so bad for them.
Dad had his blood transfusion today and some good old fish and chips! Pain has subsided but he was wheelchaired around the hospital to save energy.A cancer nurse has said it is hard to predict if he will be like this for a while or suddenly take a fall or spinal cord compression so i make the most of him while i can which is what we were doing anyway :)
ps Dads chemo was carboplatin and etopitode which is the same as small cell lung cancer and hormone injections and some radiotherapy.

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