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Dads small cell cancer

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User

Posted 12 Aug 2015 at 18:06

Thank you Mo.I would describe myself as a workaholic however the late nights getting in gone 12 and the constant belittling it was so lovely to do some gardening and go out with the husband tbh.When i went back my boss had headphones on and barely communicated and the manager told me i needed to deep clean.No welcome back or how is your Dad.Anyway the main thing is Dad is as good as he can be and managing to pop out a bit they even went to the garden centre.xx

User

Posted 30 Aug 2015 at 09:04

update Dad had a few good weeks then was ill and shivery again for a few days.Antibiotics were given.I ve been so very busy this week at work i didnt even know he was ill again sleeping alot not eating and weak.My husband took him to the gp as he was too ill to drive.Anti sickness pills were given and stronger antibiotics.I saw him saturday and he said he gets abdo pain from the cancer as its blocking his urethra .I was shocked to see him unsteady on his feet when he went to get his glass of water.
On a positive note i have found a new job..cooking from scratch only a stones throw from my last place.So after 11 yrs im leaving some unpleasantness to go somewhere i am being welcomed.I havent told them about Dad as i want a chance to get settled in.Most pple are shocked i am going however i am sure it is for the best.
I sincerely hope you are all doing as well as you can on this journey and hope Dad getting to 3 yrs with small cell prostate cancer will give someone else hope as i couldnt find anyone who got to a yr when he was diagnosed xxx

User

Posted 30 Aug 2015 at 12:49

Well done on the new job cookiegirl.

I hope they are a more compassionate lot than the previous group of saddos.

When you say most people are you talking work colleagues. If so they are a really weird lot, treating you as they did, knowing what you were going through.

Good luck with the job and I hope your dad gets some pain relief soon

We can't control the winds - but we can adjust our sails

User

Posted 30 Aug 2015 at 14:20

Paula

I am so relieved to hear you are moving jobs, the last bunch were nothing short of heartless mercenaries.

Sounds like things are unsettled again with your Dad, he has had one epic battle with small cell cancer as you have said achieving a 3 year goal is quite amazing.

I hope he is relatively comfortable but do keep an eye on his unsteadiness he would not want to fall at this stage.

All the very best

xxx

User

Posted 30 Aug 2015 at 15:38

Thank you both.yes i just reached a point where staying for any stability at work was out weighed by the alienation and quite frankly unsupportive nature of some people,It is painful when people put the boot in when you are already having a rough time.My new colleagues seem lovely and i know one of them.My boss was shocked but even i have limits for taking bulls**t.

User

Posted 30 Aug 2015 at 22:21

Seems to me they were used to taking you for granted. They dished it out - you took it.

Our little worm turned and took them by surprise. Well done you

We can't control the winds - but we can adjust our sails

User

Posted 06 Sep 2015 at 09:05

Paula,

I'm brand new to this forum, but have read your story from scratch. Reading of your love & support for your parents & battle with your employers to support your wonderful dad really resonated with me. I'm an only child, who though I am 45 & married with a hubby and 10yr old son, totally worships her parents, and to see my dad dealing and starting to fail with a 3 yr struggle with cancer which has spread extensively through all bones, spine etc is just awful.

I just wanted to say hello, tell you how inspirational your story is and what a strong and amazing person you are. Nearly cheered when I read your post saying you had got a new job. I too am a bit of a workaholic and have a rubbish employer! Your dad is so lucky to have such a wonderful caring daughter. How is your dad getting on?

Joan x

User

Posted 06 Sep 2015 at 09:45

Fabbi

I am pleased you have found Pauala's thread you two are indeed in very similar circumstances.

I hope you can support each other on your journey

User

Posted 06 Sep 2015 at 19:31

Hi Fabbi,
just in case you worry that your dad might have the same problems as Paula's dad, important to note that he has small cell PCa which is very rare and needs a diffferent treatment regime to normal prostate cancer. As far as I can make out, your dad has the normal one?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 07 Sep 2015 at 09:01

Hi Fabbi welcome to this site.I am sorry about your Dad.My own Dad has adenocarcinoma and small cell an aggresssive fast spreading type so we have been very lucky that he has made it this far.Most of the people i was following Dads and husbands succumbed in less than a yr.I hope my thread gives some hope to others that even when its advanced when diagnosed there are treatments now.
My parents are quite special in that they ve supported each other through advanced cancer and operations etc.I left my long term job sunday and start a new one fri.I hope my new colleagues will treat me kindly when Dad gets any worse (i dont intend telling them yet) and i do have savings set aside if it doesnt work out for me.
I am so sorry this disease is in your dads bones and spine ( mine too but not unmanagable pain yet)
love to all Paula xxx

User

Posted 09 Sep 2015 at 06:16

Paula,

Wishing you tons of good luck with new job on Fri!

My dad doesn't have the small cell cancer you lovely dad does, so can't imagine what kind of journey you have been through. Isn't it sad though when the tables are turned and after years of being the daughter, you find yourself in the position of looking after your parents and giving them the moral & practical support and encouragement to keep going.

Joan

User

Posted 12 Oct 2015 at 11:33

Hi everyone its been a very busy month.Dad has had good days and some bad ones.He stopped taking the anti sickness pills as they knocked him sideways in regards to energy levels.He had an xray for bone pain in his arm which showed no worsening of the spot of cancer in his shoulder.
He felt well enough to go with my brother to wales where they own a house (dads mums old house) .He walked on the beach and took pics.I was worried he wouldnt get there again it holds so many memories of lots of family hols.
I started my new job which has been fantastic a real distraction too.The people are lovely and kind and respect me.I have only mentioned about dad to one person not in detail although i am certain they will show me compassion if and when Dad gets worse.Love to all on here and i hope you are enjoying the autumnal sunshine love Paula xx

User

Posted 12 Oct 2015 at 11:53

Glad dad has picked up a bit Paula and especially glad that you've found a job you like with lovely people.

I hope (I'm sure !) they'll give you a lot of support when the time comes

All the best
Sandra

We can't control the winds - but we can adjust our sails

User

Posted 16 Oct 2015 at 13:52

I spoke too soon !! Dad has been quiet unwell with another UTI.The hospice nurse came out twice and they were going to give him an antisickness injection but the GP decided last night he wasnt ill enough for that.I hate seeing him so pale and frail he has lost soo much weight so his skin is hanging off him bless him.I decided to tell my new employers jus incase i ever came in late and they were lovely unlike my last place !! My boss even said family comes first and he would run me home if needs be as my car was written off by a lorry.Today he sounded brighter and the hospice nurse said his vital signs were good.Love to all Paula xx

User

Posted 16 Oct 2015 at 14:36

Thinking of you all Paula, no idea why your GP would decide not to let him have an anti sickness drug. Maybe he was worried it might interact with other drugs he is having.

Xxx

User

Posted 19 Oct 2015 at 15:06

I saw Dad today in town looking dapper getting his meds as he takes 20 pills a day now.He looked visibly thinner and had had a haircut.He looked a little yellow too.Said he is hardly eating has little energy.I cant say how much i hate cancer and while i am very grateful and surprised he is still here with his aggressive type i do feel sad to see another formerly strong with a zest for life man floored by this disease xx

User

Posted 19 Oct 2015 at 17:19

A day at a time Paula.

He's looking different but he has enough energy to make sure he goes out smartly dressed so he still has his self respect.

You must be very proud of him

We can't control the winds - but we can adjust our sails

User

Posted 19 Oct 2015 at 21:26

yes that is true.He has spent a few days in pjs watching the rugby on tv.He wants to buy new smaller shirts and new woollen winter coat.I am always proud of his attitude xx

User

Posted 22 Oct 2015 at 22:13

Dad decided to do a little light gardening.he felt unwell and called for help then lay in the garage as the door was open he felt dizzy and weak.Mum had shut the front door and the next thing he was vomiting inn the garden poor man.The hospice nurse said it was low blood pressure brought on by exerting himself.Dad spent the day resting wrapped in a blanket and was advised to call gp or ambulance if it happens again :(

User

Posted 22 Oct 2015 at 22:25

Poor man,so hard for you to see your dad suffering,at least he has loving family around to support him.

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