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Refine your search for "Alpharadin"

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User
Posted: 12 Sep 2020 at 22:42

https://community.prostatecanceruk.org/search?search=radium+223+&advanced=false

https://community.prostatecanceruk.org/search?search=Alpharadin&advanced=false

https://community.prostatecanceruk.org/posts/t9744-Radium-223-treatment#post155018

 

 

Edited: by member 12 Sep 2020 at 22:48  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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    User
    Posted: 12 Sep 2020 at 22:21
    Sorry about the enza Sanders, I read recently that it doesn’t work at all for 50% of men so perhaps 8 months is quite good although you would have much preferred to be in the 2 years + group.

    If searching old threads on here for Radium 223, also search for Xofigo and Alpharadin; a few past members were involved in the very early trials and wrote detailed logs here of their experiences.

    "Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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      User
      Posted: 18 Feb 2016 at 22:20

      I had six doses of Radium 223 (Alpharadin) with zero side effects. Hard to prove a negative but that was two years ago and I'm still here http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

      Nil desperandum

      Allister

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        User
        Posted: 22 Apr 2015 at 22:04

        Bazza,
        My O/H was diagnosed 24 months ago., with metastases in the spine, ribs and shoulder prostae cancer, a Gleason score of 7
        and a very sure outlook. He started off with Casodex, as well as a Prostap injection 3-monthely. He came of the Casodex in June, and went on to Abiraterone He has been on these meds. since June last year, and until seemed to be doing well. His PSA, which in the beginning was 270, with his Alk. P 290. That has come down, and so has his PSA, but only to 93. Deep disappointment.! Onco. now suggesting monthly PSA tests, and then a possible move on to dextrmorphone???!!!. When I asked him about Alpharadin, he said Oh, Yes, we can try that too. It all seemed a bit casual. he had had the usual side effects of fatigue and hot flushes. However, last Friday, his mood completely changed, for absolutely no reason, and he has been really perky the last few days. Maybe it is the sunshine.

        THANKYOU SO MUCH FOR YOUR LOVELY POST. IT BROUGHT A TEAR TO MEY EYE, AND A LUMP TO MY THROAT, BUT I FELT SO MUCH BETTER
        jENNY

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          User
          Posted: 03 Apr 2015 at 12:24

          Hi June

          I'm a cup half full kind of a guy and try to always look on the bright side http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

          I hope the Radium 223 (Alpharadin) does the trick. I had six doses of it and I'm keen to get my hands on some more http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

          Nil desperandum

          Allister

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            User
            Posted: 12 Jan 2015 at 01:07

            Alan

             

            I've had 20 sessions of Chemo (Docetaxel) in 2 x 10 sessions, spaced a year apart. I'll probably have another 10 and I have no fear of doing so. Some men have a hard time on Chemo and some don't. Docetaxel is probably one of the mildest Chemo treatments out there and I would urge you to consider it in a more favourable light. It was the first treatment in 60 years to extend life for men with advanced prostate cancer (approved by NICE in 2004) and it's kept me going many years past my prognosis http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif. Everone is different but my main side effects were dry mouth, mouth ulcers, crap nails, no eyebrows and a general feeling of "yuk" http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif. This lasted about a week post Chemo then I was back to normal. You can adjust cycles to suit holidays etc. and the only thing that I had to do was to plan around how I would feel.

             

            Hope you find this useful http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

             

            PS - I don't see this as your "only" option as you don't mention Abiraterone or Enzalutamide. If you have bone spread you can throw in Radium 223 (Alpharadin) as well!

            Edited: by member 12 Jan 2015 at 01:11  | Reason: Not specified

            Nil desperandum

            Allister

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              User
              Posted: 20 Jul 2014 at 13:12

              Hi Sue

               

              SCC is very serious and I'm impressed at how well your husband has coped http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif. I've just finished my 15th session of Docetaxel and I know how hard it can be. I did 10 lots last year and am doing a further 10 this year after my PSA started rocketing again. It's very difficult to predict the side effects of Docetaxel as it varies enormously from man to man. I get a few but overall I'm probably more fortunate than most. What I did notice though, after my last ten sessions, was that my strength definitely improved and the tiredness faded. Now back into another ten, I can confirm that the tiredness has returned http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif. My cancer is widespread to bone and I have been fortunate to get Radium 223 (Alpharadin) on a trial. There are several Radium trials on the go and it would do no harm to ask your oncologist http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

               

              Nil desperandum

              Allister

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                User
                Posted: 05 Jun 2014 at 17:10

                Those men with bone mets who are lucky enough to live in England can also apply to the Cancer Drugs Fund for Alpharadin (Radium 223) http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

                Nil desperandum

                Allister

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