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RARP Good News

User
Posted 08 Apr 2018 at 15:50
Hi All

Just for anyone having to choose treatment options and in the interests of reporting good news which may help others.

I had a Robotic Assisted Radical Prostatectomy in January last year. My DX was PT3a, Gleeson 3+4, PSA 6.4. More details on my profile.

It was a difficult decision but the MRI and Biopsy showed the tumor to be close to the edge on the left so surgery was advised with nerve sparing on the right only. Post op pathology report showed extracapsular extension but microscopic negative margins, so the way I see it the right decision and just in time.

Recovery has been fairly good with no pads required after about seven weeks. Urgency to pee and frequency has been a slight issue but manageable and recently much improved. ED also an issue which has really got me down at times but after a year or so there has been significant improvement, no where near back to normal but I am encouraged by recent improvements.

To me the really good news considering the PT3a DX is undetectable PSA so far with the latest check being just last week. I still fear a recurrence but move on positively.

Good luck to you all, especially those whos journeys are more difficult than mine so far. Also thanks to all who contribute on this site, the knowledge and experience you share is absalutely invaluable.

Good Luck to you all

Cheers

Bill

User
Posted 08 Apr 2018 at 15:50
Hi All

Just for anyone having to choose treatment options and in the interests of reporting good news which may help others.

I had a Robotic Assisted Radical Prostatectomy in January last year. My DX was PT3a, Gleeson 3+4, PSA 6.4. More details on my profile.

It was a difficult decision but the MRI and Biopsy showed the tumor to be close to the edge on the left so surgery was advised with nerve sparing on the right only. Post op pathology report showed extracapsular extension but microscopic negative margins, so the way I see it the right decision and just in time.

Recovery has been fairly good with no pads required after about seven weeks. Urgency to pee and frequency has been a slight issue but manageable and recently much improved. ED also an issue which has really got me down at times but after a year or so there has been significant improvement, no where near back to normal but I am encouraged by recent improvements.

To me the really good news considering the PT3a DX is undetectable PSA so far with the latest check being just last week. I still fear a recurrence but move on positively.

Good luck to you all, especially those whos journeys are more difficult than mine so far. Also thanks to all who contribute on this site, the knowledge and experience you share is absalutely invaluable.

Good Luck to you all

Cheers

Bill

User
Posted 26 Jul 2018 at 17:19

Great news Bill. I have my next blood test 1st August and am anxious I have to admit.

Hope things continue to go well for you.

 

Ian

User
Posted 26 Jul 2018 at 18:44
Thanks Ian for the good wishes and all the best to you for your results on the 1st

Cheers

Bill

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User
Posted 08 Apr 2018 at 19:05

Thanks for the update Bill

Always good to see a positive post

We can't control the winds - but we can adjust our sails
User
Posted 08 Apr 2018 at 19:50

Brilliant news Bill - keep on keeping well :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Apr 2018 at 08:06
Hi Bill

What great news and I am sure it will give encouragement to others in the earlier stages of their journey.

All the best,

Kevan

Life doesn't have to be perfect to be wonderful 

User
Posted 26 Jul 2018 at 15:40
Just been for another 4 month follow up and good news, PSA still <0.001 undetectable, phew I hate the anxiety increase as the day gets closer.

Maybe going to try envicorp for ED and seeing ED Nurse soon to discuss. Not sure whether to go for injection or pellets. Any thoughts anyone?

Uro insists high dose Viagra is still better than daily Cialis, but as discussed in other posts I'm not convinced and will also discuss with ED Nurse.if no luck there I may try getting it on line.

Urge and freaquancy is not to bad now and manageable. Thinking of trying Mirabetron just when travelling, but this will only work if it acts fairly quickly for me. Uro said it acts quickly for some and can take weeks for others.

All the best of luck to all of you and your carers especially those who's news has not been so good.

Cheers

Bill

User
Posted 26 Jul 2018 at 17:19

Great news Bill. I have my next blood test 1st August and am anxious I have to admit.

Hope things continue to go well for you.

 

Ian

User
Posted 26 Jul 2018 at 18:44
Thanks Ian for the good wishes and all the best to you for your results on the 1st

Cheers

Bill

User
Posted 07 Aug 2018 at 21:17
Anyone tried both Alprostadil pellets and injections. Any preference either way?

Cheers Bill

User
Posted 07 Aug 2018 at 22:53
The pellets work for fewer men but those that are successful seem to prefer it to a needle. No oral sex with pellets, I imagine.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Aug 2018 at 11:37

Originally Posted by: Online Community Member
No oral sex with pellets, I imagine.

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

User
Posted 08 Aug 2018 at 14:12

I have tried them all!!

Pellets I found more painful than jabs  and very unreliable. And you have to keep them in the fridge which can be embarrassing when you have house guests! 

Injections WORK but getting the dose right is tricky my URO said start with 15ml I used 10 and still had a 3 hour hard on. In the end I was on 2.5.

Agree with your doc re the pills but they made me feel miserable with dull aches and blurry vision.

Good news is 3 years on and I can get away with a cock ring Thanks again for that tip Chris!!

User
Posted 08 Aug 2018 at 14:26

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
No oral sex with pellets, I imagine.

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

 

I said I was getting an appointment with the ED Nurse to try pellets or injections. I dont think oral sex was actually on offer. But if that is the case welll injections it is then

Cheers

Bill

User
Posted 08 Aug 2018 at 14:35
Injections don’t work for everyone, there are some men for whom nothing works including the vacuum. John was okay with injections until his priapism and after that, they only worked about a third of the time. One of the things that is out of our control is how they have been stored at the pharmacy, whether they have been left in a hot delivery vehicle and so on; we definitely had a faulty batch where every single injection failed. Dad has always used the single chamber caverject which has to be stored in the fridge and then mixed just before injecting and doesn’t seem to be as sporadic as the dual chamber version but is of a much higher dose.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Aug 2018 at 15:36
Thanks again all

I'm not sure if I will actually try anything for real at the appointment or have a chat and take either or both to try at home?

I have a slight concern of getting a stiffy that lasts to long and having to wait there for it to subside. Although I suppose if that happens atleast I'll know it works.

Cheers

Bill

 
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