My PSA is undetectable in four tests six months after my surgery.
If and when I have detectable PSA that rises over several tests, over months or years, and breaches the 0.2 official level for biochemical occurrence, I will have a choline or G68 PET-PSMA scan to determine the exact location of any metastases, and then highly localised radiotherapy to destroy them, that’s if I elect to have any treament at all. One oncologist suggested hormone therapy for recurrence (= chemical castration) for up to two years, which I am not too enamoured with.
As for prognostication tools - the Memorial Sloane Kettering Nomogram is the one they all seem to use, you could always book a reading with Mystic Meg or Gypsy Rose Lee on Blackpool Pier. The fifteen-year recurrence rates are based on up to fifteen year-old data, and medical science, particularly in this field has moved on tremendously. Moreover, I don’t think they factor in the skill of any surgeon, and I happen to think I had one of the best in the country, as evidenced by my virtually pain-free surgery, rapid recovery and 100% continence.
So, no, I am not now anxiously awaiting the result of my next PSA test, whenever I get round to having it in the next couple of months. I have been chilled about the whole thing since the start a year ago, which may be difficult for some here to believe. My G score is 7, intermediate agressive, not 9 or 10 very agressive, and it’s my belief that any secondaries will be the same score, as offshoots of the original cancer.
One silly oncologist told me I am cured, and another, more of a realist told me, ’It won’t kill you’. So I guess they’ll have to put something else on my death certificate. I’m only bothered about the date written on it!
So enjoy your Christmas as much as you can, and look forward to the New Year, when all will be revealed - or not!
Edited by member 23 Dec 2018 at 05:24
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