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RP December 16th 2019

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User
Posted 20 Dec 2019 at 21:08

Thanks for the quick response guys. Post Catheter it is then.

User
Posted 26 Dec 2019 at 12:38

Looking Ahead 29th December 2019

Tomorrow is TWOC and staples removed. Had a very enjoyable Christmas mostly  watching the grandson playing and having a very enjoyable Christmas dinner and was surprised by my appetite. I am now feeling much better and getting stronger by the day and even managed an hour shopping with the wife this morning.

Depending upon how my TWOC goes tomorrow I am now wondering when I will be able to start walking and swimming again. At the moment I am suffering with chronic lower back pain and have done on and off for almost 15 years. Walking and swimming are the two forms of exercise which greatly alleviate my symptoms .I am now suffering more than usual due to time spent being inactive and understand it might be dependent on what happens when they remove the catheter. My main worry is not so much incontinence but rather chronic retention and therefore have to wear the Catheter again. I did try self catheterisation  last time they removed the catheter (fitted after biopsies due to water retention)but found it too painful perhaps due to water infection or as the prostate area was still very tender.As I am now feeling mush better and hopefully continue to do so but fear my back will continue to get weaker if I don,t start to get going soon. Any guidance will be much appreciated. best regards Dave

 

 

 

 

 

 

 

 

User
Posted 26 Dec 2019 at 13:06

Keep the liquids going avoiding too much caffeine. Alcohol for me causes drips as it’s a muscle relaxant. Ultimately should settle when stitches dissolve over time. Kegel exercises will help.

I have lower back issues as well. Found a gentle use of tens machine helped as it was killing me night before my trip into London for TWOC. Going forwards I used techniques shown by physio to manage it as gym is mostly off the radar for a few weeks. If you can I’d try and hook up with the urology team for recommendations/advice in respect of physiotherapist or Pilates. 

User
Posted 26 Dec 2019 at 13:20

I have tried Tens machine in the past but unfortunately does not work for me. I have tried just about everything in the past but again nothing other than swimming and walking are the only things that work. However I will do as you suggested and try and hook up with the physio team and see what they say. Cheers again for your input.

 

 

User
Posted 26 Dec 2019 at 13:25

Cheers Dave

yeah touch base with medical team

with me they encouraged me to start walking a 1-2km a day from day 2 after surgery. Just gentle and listening to your body etc. Swimming I suspect would be out of bounds until those wounds heal I guess five weeks. It’s all about protecting those incisions from hernia as well as internal cuts healing etc. Hope you find resolution to the back issues.

User
Posted 26 Dec 2019 at 14:18

Originally Posted by: Online Community Member

Cheers Dave

yeah touch base with medical team

with me they encouraged me to start walking a 1-2km a day from day 2 after surgery. Just gentle and listening to your body etc. Swimming I suspect would be out of bounds until those wounds heal I guess five weeks. It’s all about protecting those incisions from hernia as well as internal cuts healing etc. Hope you find resolution to the back issues.

I am kind of thinking that way myself regarding the swimming and will probably leave it until the socks are off + another week. Once the catheter is out tomorrow will start walking again. Whenever my back is good I frequently do anywhere up to 10 miles walking .Hopefully I will get back up to that one day.

User
Posted 26 Dec 2019 at 14:48

Hubby Was told gentle  walking 1 - 2 K after catheter removal. No swimming or yoga for him yet at 8 weeks. Will check with Surgeon in 4 weeks.

User
Posted 26 Dec 2019 at 17:33

Originally Posted by: Online Community Member

Hubby Was told gentle  walking 1 - 2 K after catheter removal. No swimming or yoga for him yet at 8 weeks. Will check with Surgeon in 4 weeks.

Cheers for that. This has given me a better idea what to aim for. At least until I get to speak to the surgeon or nurse.

User
Posted 26 Dec 2019 at 17:45

Check at your 6 week check. We were told no cardio yet at that appt. 

User
Posted 26 Dec 2019 at 17:46

Also no lifting heavy weights for 12 week.

User
Posted 26 Dec 2019 at 17:59

I postponed my powerlifting competition 🤔😀

User
Posted 27 Dec 2019 at 12:03

Sitting here in the Urology department waiting room after the catheter was removed. What a breeze. Clips removed which was also painless. Sitting here after 6 cups of water and peeing into a container. I think more water was in my nappy. Haha. Good news bladder was almost Mt compaired to last time which was 450ml. So hopefully chronic retention gone? Another try again after drinking more water and I can go home. Good job I brought a good supply of nappies /pads. Thanks again guys for getting me prepared.

User
Posted 27 Dec 2019 at 13:31

Great news. Yeah nappy and black trousers help lots 😀

My train back had no operational toilets until I explained my predicament to the guard. I broke into a sweat during the 90min journey but managed to get into a loo cubicle. Interestingly I was fully continent right after catheter removal but then started to drip day 2...I think due to inflammation and swelling coming out after 15 days with the pipe in. The good news is things have slowly improved over time. Pretty much dry all day with maybe the odd drip. Nights have been mostly fine. Try to reduce water consumption in the evening. I slow it right down after day 8/9pm I was necking it the other week after a beer right to bed time and got caught short an hour after going to bed. Thankfully pad captured it and quickly showered down and took it on the chin for not following the instructions given :-)

User
Posted 27 Dec 2019 at 13:35

back home after another 45 mins of drinking more cups of water and changing pads. . really glad I did not need to go to urology department to have the catheter put back due to cronic water retention. Hopefully that [rpblem is now sorted. This was one of the reasons I went down the surgery route. Now to start the pelvic floor exercises . Might try the app thats been recommended on here to remind me. Onwards and  upwards. feeling pretty good at the mo. Waiting fpr the next appointment  in about 4 weeks on monday to find out if they got all the cancer, although I have been told I might get a call before then. best regards Dave and your comments are appreciated

 

 

 

 

User
Posted 27 Dec 2019 at 13:44

Originally Posted by: Online Community Member

Great news. Yeah nappy and black trousers help lots 😀

My train back had no operational toilets until I explained my predicament to the guard. I broke into a sweat during the 90min journey but managed to get into a loo cubicle. Interestingly I was fully continent right after catheter removal but then started to drip day 2...I think due to inflammation and swelling coming out after 15 days with the pipe in. The good news is things have slowly improved over time. Pretty much dry all day with maybe the odd drip. Nights have been mostly fine. Try to reduce water consumption in the evening. I slow it right down after day 8/9pm I was necking it the other week after a beer right to bed time and got caught short an hour after going to bed. Thankfully pad captured it and quickly showered down and took it on the chin for not following the instructions given :-)

Good to hear you were continent almost immediately. I am totally the oppisite  although I must admit drinking 6 cups of water in an hour instead of 24 hours is a bit much. HaHa. I will probably stop drinking about 7 tonight and hopefully get through the night without incident wearing a fill knicker pad which makes me feel a bit more confident if that makes sense. not sure if they are any better but definately  more expensive

Edited by member 27 Dec 2019 at 13:47  | Reason: Not specified

User
Posted 27 Dec 2019 at 14:06

Yes I used a full nappy for a few nights too for reassurance. I stuffed mine with a tena levels three and some kitchen paper for belt a braces. A few nights in just went to tena 3 and now just use tena 2 but no issues at all at night. Kegel helping lots for daytime leaks. 

User
Posted 27 Dec 2019 at 15:59

Wow pads are only lasting about 30 mins to about an hour. This could work out expensive. I give my doctors a ring to see if I can get them on prescription. No way Hosay. Tonight should be interesting. Now wearing Nickers and a night pad together hoping it lasts a bit longer. I might have to stop tea altogether. I think it is easing a bit as all that water I drank earlier has worked its way through.

User
Posted 27 Dec 2019 at 16:30

Good to hear your update Dave. My TWOC is Monday, so your experience is really helpful! Thanks.

User
Posted 27 Dec 2019 at 16:49

Hi BHP

That sounds normal sorry to say. Water may be less of an irritant.  

User
Posted 27 Dec 2019 at 17:41

Dave

You can get an online next day delivery from Boots or The Incontenence shop which might save you some money. 

 
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