Dads small cell cancer

update Dad had a few good weeks then was ill and shivery again for a few days.Antibiotics were given.I ve been so very busy this week at work i didnt even know he was ill again sleeping alot not eating and weak.My husband took him to the gp as he was too ill to drive.Anti sickness pills were given and stronger antibiotics.I saw him saturday and he said he gets abdo pain from the cancer as its blocking his urethra .I was shocked to see him unsteady on his feet when he went to get his glass of water.
On a positive note i have found a new job..cooking from scratch only a stones throw from my last place.So after 11 yrs im leaving some unpleasantness to go somewhere i am being welcomed.I havent told them about Dad as i want a chance to get settled in.Most pple are shocked i am going however i am sure it is for the best.
I sincerely hope you are all doing as well as you can on this journey and hope Dad getting to 3 yrs with small cell prostate cancer will give someone else hope as i couldnt find anyone who got to a yr when he was diagnosed xxx

I am so relieved to hear you are moving jobs, the last bunch were nothing short of heartless mercenaries.

Sounds like things are unsettled again with your Dad, he has had one epic battle with small cell cancer as you have said achieving a 3 year goal is quite amazing.

I hope he is relatively comfortable but do keep an eye on his unsteadiness he would not want to fall at this stage.

All the very best

xxx

Mo

Seems to me they were used to taking you for granted. They dished it out - you took it.

Our little worm turned and took them by surprise. Well done you

Hi Fabbi welcome to this site.I am sorry about your Dad.My own Dad has adenocarcinoma and small cell an aggresssive fast spreading type so we have been very lucky that he has made it this far.Most of the people i was following Dads and husbands succumbed in less than a yr.I hope my thread gives some hope to others that even when its advanced when diagnosed there are treatments now.
My parents are quite special in that they ve supported each other through advanced cancer and operations etc.I left my long term job sunday and start a new one fri.I hope my new colleagues will treat me kindly when Dad gets any worse (i dont intend telling them yet) and i do have savings set aside if it doesnt work out for me.
I am so sorry this disease is in your dads bones and spine ( mine too but not unmanagable pain yet)
love to all Paula xxx

Hi everyone its been a very busy month.Dad has had good days and some bad ones.He stopped taking the anti sickness pills as they knocked him sideways in regards to energy levels.He had an xray for bone pain in his arm which showed no worsening of the spot of cancer in his shoulder.
He felt well enough to go with my brother to wales where they own a house (dads mums old house) .He walked on the beach and took pics.I was worried he wouldnt get there again it holds so many memories of lots of family hols.
I started my new job which has been fantastic a real distraction too.The people are lovely and kind and respect me.I have only mentioned about dad to one person not in detail although i am certain they will show me compassion if and when Dad gets worse.Love to all on here and i hope you are enjoying the autumnal sunshine love Paula xx

I spoke too soon !! Dad has been quiet unwell with another UTI.The hospice nurse came out twice and they were going to give him an antisickness injection but the GP decided last night he wasnt ill enough for that.I hate seeing him so pale and frail he has lost soo much weight so his skin is hanging off him bless him.I decided to tell my new employers jus incase i ever came in late and they were lovely unlike my last place !! My boss even said family comes first and he would run me home if needs be as my car was written off by a lorry.Today he sounded brighter and the hospice nurse said his vital signs were good.Love to all Paula xx

I saw Dad today in town looking dapper getting his meds as he takes 20 pills a day now.He looked visibly thinner and had had a haircut.He looked a little yellow too.Said he is hardly eating has little energy.I cant say how much i hate cancer and while i am very grateful and surprised he is still here with his aggressive type i do feel sad to see another formerly strong with a zest for life man floored by this disease xx

yes that is true.He has spent a few days in pjs watching the rugby on tv.He wants to buy new smaller shirts and new woollen winter coat.I am always proud of his attitude xx

dad seems in good spirits if a little pale and too tired to walk into town.He has blood tests this week to check for cancer progress.Thank you again for all your lovely replies xx Paula

Ahh thank you Paul.
Dad is a very strong man normally and if he isnt it is because he is really unwell.Shame that a man who has spent his life helping others through fostering and adoption has this blessed illness but im sure that is the same for many a good man on here.I love him to bits xx Paula

Thinking of you and your dad, Paula. You have had a tough time with your lack of support at work. At least I was retired when coping with my father's illness.

Paul

Saw Dad he seemed ok.Mum is looking to hire a wheelchair as he cant walk far due to bad pelvic pain He hopes to get a blue badge although im not sure he should be driving and hasnt really only once to get a blood test,xx

dads been in bad pain.Gp said it is cancer in his spine causing it.His bloods are low so blood transfusion tuesday.

Dads getting wheelchair thursday and seems to flip between getting about then being unable so occ therapist is organising stools and walker for him.Still not sure how things are going or wether this is the new normal or more deterioration but he manged a small meal yesterday. Week for week day by day is what we are doing.Love to everyone and thank you all for the replies Paula xx

Hi Paula,
Thank you for sharing your story. It's heartbreaking. Your dad is very courageous man. He is blessed to have you!
My husband was diagnosed with small cell prostate cancer last month. His PCP misdiagnosed him, we lost 3 months without any treatment... There is no light at the end of the tunnel, so far.... There is not much information also about this kind of cancer and not many doctors who know how to treat it.
My dear husband is doing chemo now and eventually radiation. I have hard time to accept it, and I can't change anything, just be with him and help him.
God bless you and your father.
P.S. Please excuse me for any mistakes as English is my second language.

Myhusbandwife i am sorry you are both going through this and let my dear Dad give you both some hope.i found very little info 3 yrs ago and admit to needlessly worrying at times about the aggressive cancer,
Dad remarkably had chemo in 2012 by dec it had knocked the cancer back and lived a normal life with mum who also had stage 4 rare cancer until its return summer 2014.(we knew it couldnt be cured).
Treatment has come on leaps and bounds and i sincerley hope your husband has the excellent care that my lovely Dad has and that he also responds to the chemotherapy.
Something i wish i had known in 2012.I believe it is a measure of how much we love someone when we feel so bad for them.
Dad had his blood transfusion today and some good old fish and chips! Pain has subsided but he was wheelchaired around the hospital to save energy.A cancer nurse has said it is hard to predict if he will be like this for a while or suddenly take a fall or spinal cord compression so i make the most of him while i can which is what we were doing anyway :)
ps Dads chemo was carboplatin and etopitode which is the same as small cell lung cancer and hormone injections and some radiotherapy.