Search results for "cabazitaxel"

Hi Phil 

Keep positive mate,did you ask about clinical trials, cabazitaxel or letethium 177?I find it strange they don't ask you to have a blood test before every oncology appointment I went yesterday for a blood test and my next appointment isn't until end of Jan,I have one every month.

Best wishes Phil 

Yes, got lots of questions this time and no idea why Cabazitaxel hasn’t been mentioned yet. I’ll update later or tomorrow. 

Cheers

Phil

Hi

None as yet,I've got a face to face interview at Royal Marsden in London on 7th Jan to discuss things,I'll update on my thread when I know anything.

I don't understand why your team have not mentioned anything to you about cabazitaxel or trials or is it the postcode lottery butting it's nose in.

Phil 

Hi Phil 

Yes definitely ask about cabazitaxel,I've been offered it and it's on the table for me and like you I've had Docetaxel but I'm still weighing up my options with self funded letethium and clinical trials.

All the best Phil 

Hi guys. I’ve been doing a bit of research , not much but a bit. I’ve seen it’s really common to try Cabazitaxel after Docetaxel doesn’t work. So I’m wondering if I should ask tomorrow at my F2F with my consultant. The Radium is interesting but it will only help my bone mets. I want to hear why they came to their plan… Of course the plan may have changed tomorrow…! 
Cabazitaxel seems to have less nasty side effects. So maybe I can manage a full course … 

Take care 

Phil

Thank you all so much for your messages and offers,I have to take every step as it comes,will wait for phone consultation with Royal Marsden,I'm also asking questions about IFR (independent funding request) my oncologist is putting me forward for clinical trials and theres still the option of cabazitaxel and radium,my next oncology appointment is end of January when decisions will have to have been made.

I hope I can keep well until then,I'm not to bad at moment phisically but mentally it's challenging as some of you know to well.

It is very annoying, disappointing and frustrating that there's treatment in this country that is out of reach because of cost,I've paid my taxes and NI for 40 years!!!! I'm sorry I'm being bitter..

All the best regards Phil 

Hi Phil. No never mentioned Cabazitaxel . I wonder if they’re concerned enough about the bone marrow involvement to want to knock it back asap… ? 
Feel a little shell shocked at the moment as I’m sure you do too. 
I will have loads of questions at the next consultation. 
it’s another treatment I need to Google 🤣… 

Take care 

Phil

Hi Phil 

Has Cabazitaxel not been offered to you,I'm guessing not because you had a rough time with Docetaxel but I would definitely ask the question if it's available.

All the best Phil 

Hi Phil and thanks for your thoughts 

There is NHS options on the table,radium 223 cabazitaxel my oncologist is also asking about any clinical trials that may be available, lutetium 133 should be available for you Phil ask your oncology team about it but it can be costly,I should be getting info in the next few weeks regarding this and I'll post when I know.

All avenues have to be explored 

Regards Phil 

Hi guys 

Update time....Pet scan results in not good news cancer is on the move,PSA upto 59,all bloods across the board look ok.QOL still pretty good.

Being referred to Royal Marsden for phone consultation for possible course of lutetium-177 and possible clinical trails on NHS and cabazitaxel on the back burner.

Does anybody know a ball park figure for a 6 cycle course of lutetium-177 will cost as I will have to self fund?I've saw a figure of 20 grand...does that sound about right?

Regards Phil