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User
Posted 10 Jan 2019 at 14:53

Hi everyone:


Quick recap;


Gleason 3+4 (anterior) misdiagnosed a year ago with prostatitis - ok thats harsh - they couldnt find the lesion as it was in the anterior of the prostate near the edge


T3 (no seminal vesicles N0 M0 no perineurial)


HT/RT treatment


HT prostap for a year


Psa prior to Radiotherapy <0.1 Radiotherapy for 7 weeks (due to bowel complications in the passed he has bowel cancer but cured of that over 13 years ago) 


1st PSA test following radiotherapy this week.


Results in today <0.1!


I know we have miles and miles to go and months and years of anxiety and ups and downs as we ride the prostate cancer rollercoaster ahead of us but the first score is really good and boy did we have "psa anxiety this week! Dry January may be broken tonight.....!


Just thought you would like to know


 


Jenny and Allan x

User
Posted 10 Jan 2019 at 22:21

Oh my God, I thought dry January meant only dry white wine, dry gin, dry martini....

User
Posted 22 May 2019 at 22:28
Great news :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 10 Jan 2019 at 14:53

Hi everyone:


Quick recap;


Gleason 3+4 (anterior) misdiagnosed a year ago with prostatitis - ok thats harsh - they couldnt find the lesion as it was in the anterior of the prostate near the edge


T3 (no seminal vesicles N0 M0 no perineurial)


HT/RT treatment


HT prostap for a year


Psa prior to Radiotherapy <0.1 Radiotherapy for 7 weeks (due to bowel complications in the passed he has bowel cancer but cured of that over 13 years ago) 


1st PSA test following radiotherapy this week.


Results in today <0.1!


I know we have miles and miles to go and months and years of anxiety and ups and downs as we ride the prostate cancer rollercoaster ahead of us but the first score is really good and boy did we have "psa anxiety this week! Dry January may be broken tonight.....!


Just thought you would like to know


 


Jenny and Allan x

User
Posted 10 Jan 2019 at 18:00
That’s wonderful news. Thanks for posting this as I have a similar diagnosis and will be having RT March/April and although I am already positive about my result this has helped to strengthen my thoughts

Bob
User
Posted 10 Jan 2019 at 18:18

Great News, Jenny & Allan!!!


All the Best,


Steve 

User
Posted 10 Jan 2019 at 18:20
FANTASTIC. What’s dry January? Just because it’s been clement ? :-))
User
Posted 10 Jan 2019 at 18:29

Originally Posted by: Online Community Member
FANTASTIC. What’s dry January? Just because it’s been clement ? :-))


It means "not drinking alcohol", Chris smile .


Cheers,


Chris


 

User
Posted 10 Jan 2019 at 20:50

Great news. Thanks for sharing.

Ido4

User
Posted 10 Jan 2019 at 20:52

I am also on a ”dry January”


I was getting far too used to enjoying a bothle of red every night so having a bit of a reset 

User
Posted 10 Jan 2019 at 22:22
🤣🤣🤣🤣🤣🤣
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 11 Jan 2019 at 09:34

Thank you, your post gives us hope. So pleased for you both! well done.

User
Posted 11 Jan 2019 at 09:37

Thank you.
My head says we well and truly broke dry January!
I know we have a long way to go and there may be both good and bad days to come but we have learnt to absolutely take and enjoy the good days!
All the best
Jenny and Allan
x

Edited by member 11 Jan 2019 at 09:39  | Reason: atrocious spelling

User
Posted 17 May 2019 at 14:47
No.

Why don’t they speak English?

Cheers, John.
User
Posted 23 May 2019 at 15:26

Good news overall. You are right to get and and enjoy life.


Best wishes,

Ido4

User
Posted 01 Mar 2022 at 19:33

Brilliant news 👍🏽 Great results, long may this continue 

User
Posted 01 Mar 2022 at 21:51

What great news, it’s posts like this that are keeping me going xx

User
Posted 01 Mar 2022 at 22:49
Great update Jenny 🎉👏
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 01 Mar 2022 at 23:04

Excellent. Anything under 2.2 would be considered acceptable, so 0.2 is excellent. Bet that UTI caused a panic a few years ago.

Dave

User
Posted 02 Mar 2022 at 17:13

Great news Jenny. Nice to hear from you.

Ido4

User
Posted 20 Sep 2022 at 12:22

Scores on the doors;


0.3 small increase from 0.2 almost 4 years since end of radiotherapy. They aren't too worried however repeat bloods in 4 months to err on the side of caution. Psa has jumped about a bit in this journey so I thought it would be useful to list the results in case anyone else finds it useful (no psa journey is the same!).


Background: T2c/3a Gleason 3+4 psa 16. Hormones for a year and Radiotherapy (7 weeks) finished November 2018.


 


So since radiotherapy finished end of 2018 the results have been 0.2 0.2 0.4 1.0 (uti), 0.4, 0.2 0.2 0.2 0.2 and today 0.3


We haven't got that panicky feeling in the pit of our stomachs yet that we are all used to so that bodes well!


Thinking of you all.


 


Jenny x

User
Posted 20 Sep 2022 at 12:47
Excellent result!

Best wishes,

Chris
User
Posted 20 Sep 2022 at 14:32

Great results Jenny.  We all keep our fingers crossed following on from that first ‘undetectable’ result and just pray going forward!


Ange x

Show Most Thanked Posts
User
Posted 10 Jan 2019 at 18:00
That’s wonderful news. Thanks for posting this as I have a similar diagnosis and will be having RT March/April and although I am already positive about my result this has helped to strengthen my thoughts

Bob
User
Posted 10 Jan 2019 at 18:18

Great News, Jenny & Allan!!!


All the Best,


Steve 

User
Posted 10 Jan 2019 at 18:20
FANTASTIC. What’s dry January? Just because it’s been clement ? :-))
User
Posted 10 Jan 2019 at 18:29

Originally Posted by: Online Community Member
FANTASTIC. What’s dry January? Just because it’s been clement ? :-))


It means "not drinking alcohol", Chris smile .


Cheers,


Chris


 

User
Posted 10 Jan 2019 at 20:00

Lol!!!


 

User
Posted 10 Jan 2019 at 20:14
Why would Anyone want to do that ??
;-))
User
Posted 10 Jan 2019 at 20:50

Great news. Thanks for sharing.

Ido4

User
Posted 10 Jan 2019 at 20:52

I am also on a ”dry January”


I was getting far too used to enjoying a bothle of red every night so having a bit of a reset 

User
Posted 10 Jan 2019 at 22:21

Oh my God, I thought dry January meant only dry white wine, dry gin, dry martini....

User
Posted 10 Jan 2019 at 22:22
🤣🤣🤣🤣🤣🤣
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 11 Jan 2019 at 06:49

🧐😂

User
Posted 11 Jan 2019 at 09:34

Thank you, your post gives us hope. So pleased for you both! well done.

User
Posted 11 Jan 2019 at 09:37

Thank you.
My head says we well and truly broke dry January!
I know we have a long way to go and there may be both good and bad days to come but we have learnt to absolutely take and enjoy the good days!
All the best
Jenny and Allan
x

Edited by member 11 Jan 2019 at 09:39  | Reason: atrocious spelling

User
Posted 16 May 2019 at 14:58

Hi ; results are in.


psa 16


gleason 3+4


mostly 3


t2c/3a no seminal vesicles or node involvement 


 4 months since last Psa (which was <0.1 ) today’s results were 0.2 we had a bit of a wobble as it has gone up. He finished radiotherapy November 2018 and not on any HT any reassurance gratefully received but I think 0.2 is a good result?


thanks for reading  


 


 


 

User
Posted 16 May 2019 at 19:30
Stay calm. The PSA jumps about a bit after RT - some oncos refuse to have PSA tests done so soon after the treatment.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 16 May 2019 at 20:02

Thanks Lyn, it’s been 6 months since 1st Psa At 8 weeks post radiotherapy was<0.1 so we naively thought it would stay that low.


do you think that the fact his testosterone is coming back has something to do with it?


so am guessing we haven’t reached a nadir yet?


 


 


 


x


 

User
Posted 16 May 2019 at 20:05
The nadir typically occurs 18 months after treatment, so you’ve a long way to go yet.

Cheers,

Chris
User
Posted 16 May 2019 at 20:20

Thanks Chris! X

User
Posted 16 May 2019 at 21:16

Originally Posted by: Online Community Member


Thanks Lyn, it’s been 6 months since 1st Psa At 8 weeks post radiotherapy was<0.1 so we naively thought it would stay that low.


do you think that the fact his testosterone is coming back has something to do with it?


so am guessing we haven’t reached a nadir yet?



It could be to do with testosterone but also, he still has a prostate which will have healthy prostate cells producing healthy PSA. As long as it stays under 2.0 you are on to a winner!  

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
 
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