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So scared

User
Posted 05 Dec 2019 at 12:39
If indeed his Gleason score is 3+3=6, you may or may not be encouraged to know that if he had critical illness insurance with Aviva, they would not pay out as G6 is not classed as ‘life threatening’.

When you go to the next consultation, go with a list of questions, and if you want, record the answers on your phone. Moreover, speak to both a urological surgeon and an oncologist as to the way forward.

I hope old grumpy bum has cheered up a little bit😉

Cheers, John.

User
Posted 10 Jan 2020 at 09:26

Happy New Year to everyone and I hope that it is for us all.

I thought that I would give an update on our journey which started in December. My husband has been confirmed as having prostate cancer with a Gleason score of 7. He had a bone scan and we received the results January 2nd.

The scan was clear however the cancer has spread and he is no longer eligible for surgery but started on oral hormone therapy the same day. He will be getting his first injection next Friday before starting Radiotherapy.

Both his Consultant and the Prostate Nurse were positive about his prognosis which has reduced some of our fears. 

Although we don't expect an easy ride with this at least the waiting and uncertainty is over.

You certainly find out who your friends are when the dreaded "C " word is mentioned.

The worst Christmas ever but hopefully a happier New Year.

Thank you for your support. 

Anni 

User
Posted 10 Jan 2020 at 13:25

You mentioned ‘you know who your friends are’ - in my case loads of friends who I hadn’t heard from for yonks got in touch to commiserate with me when they heard about my diagnosis of The Big C, presumably to offer me the Last Rites!

I have to say they may or not be disappointed as the reports of my imminent untimely demise were somewhat exaggerated...

Cheers, John.

Edited by member 10 Jan 2020 at 13:26  | Reason: Not specified

User
Posted 10 Jan 2020 at 14:20
Where has the cancer spread to, Anni?

Best wishes,

Chris

User
Posted 10 Jan 2020 at 16:40
Sorry about the spread and now Gleason 7 but hopefully HT/RT will now do the job. It does show that it is as well to wait for a full diagnosis before making judgements.
Barry
User
Posted 10 Jan 2020 at 19:31

I am not sure where it has spread to as we got so much information I don't think that we took it all in and the news that it had not affected his bones seemed to take priority. He has an appointment for his urine output in early February another scan I think. The Consultant said something about the hormone treatment should shrink the obstruction or he could shave it to encourage a more positive flow of urine before he starts the radiotherapy.

Overall he did not seem too concerned about the change in treatment  and explained that the radiotherapy would not change the outcome if he had surgery. 

I have a list of questions to ask the prostate nurse when we see her on Friday.

My post earlier referred to support coming from people you do not expect it to come from and people who you thought were friends avoiding you like you have the plague. Interesting experience and a steep learning curve from different directions. 

Thank you again for taking the time to read this and your replies.

Anni

 

User
Posted 10 Jan 2020 at 19:42
So it sounds as if your husband will be on a treatment pathway with curative intent? That's excellent news. I had very similar treatment myself: 6 months' HT, then RT over two months and a further year's HT, which I'll finish next month. In my case at least the treatment hasn't been too bad at all in terms of side-effects. Please ask if there's anything you'd like to know about RT!

Very best wishes,

Chris

User
Posted 09 Apr 2020 at 10:23

Update my husband is following the prescribed pathway and is having hormone injections next one due later this month. His Radiotherapy has been postponed due to the virus however he is much more upbeat about his future which is great. He has been reassured that he is on a cureable pathway and he is starting to think about a holiday however finding affordable insurance has become difficult. We have bought annual travel insurance from Cover for you for several years but they will no longer insure him. Does anyone have any experience of this and where can we buy affordable insurance? Surprisingly though it has not lowered his mood. Hope that everyone is remaining safe and well. Thank you. 

User
Posted 09 Apr 2020 at 10:48

Ann,

So pleased your husband is feeling better about the future now, and for you too.

Good insurance deals can sometimes be had buy paying for a premier banking account that includes insurance. You will probably have to pay an extra premium for the cancer, but this is often vastly less than from the travel insurance companies. It can also vary considerably depending where you are in treatment - it will likely become cheaper the longer after radical treatment (radiotherapy in your case) you take it out.

Do have a look at Macmillan's advice about traveling. They do a free book on it which you can pick up from any Macmillan cancer centre (if they're still open - probably available online too).

User
Posted 09 Apr 2020 at 10:55

As regards travel insurance have a look here https://community.prostatecanceruk.org/posts/t21596-Travel-Insurance-so-high

 

Edited by member 09 Apr 2020 at 10:55  | Reason: to highlight link

Barry
User
Posted 09 Apr 2020 at 12:11

Thank you everyone. I will discuss the suggestions with him. Best wishes Ann 

 
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