Thanks Gents. I shall join you for a glass or three this evening. πΊ
Adrian. I started salvage treatment 7 months after RARP.
I had RARP in November 2023. (PSA 22, T3b, G5+4). The UCAN surgeon reckons I was 6-9 months from being terminal. A month after surgery (on 27th Dec 2023) I was admitted to hospital with a UTI. (I felt hellish over Xmas). I was in for a week on an antibiotic drip every six hours. 06:00 - 12:00 -18:00 - 24:00. When I was discharged on 4th Jan 2024 my PSA was down to 0.16.
In April 2024 my PSA was up to 0.2. I had a PET scan which showed a teeny-tiny amount of cell(s) hiding in the lower right of my prostate bed. It was only an eagle-eyed junior radiographer that spotted it. Everyone else, including my surgeon, missed it. It was then that I was passed from UCAN to oncology, & having consulted with my oncologist it was decided to go on to a HT/RT regime. They were not alarmed by the slight rise in my PSA levels, so it was a couple of months before starting the 2yr HT. I didn't mind having the RT but I was reluctant to go on HT. The oncologist said that she is looking to cure me, & HT is part of that cure. Who was I to argue?
I started HT in July 2024. I was on 1 month of bicalutamide tablets, (halfway through that it was my first Prostap3 injection).
In late October 2024 I started a 35 day session of RT that targeted the whole of the prostate bed. (I have three-blue-dot tattoos to prove it!). That finished at the end of November 2024. After that my PSA has been undetectable. The 35 zaps appear to have done their work, along with the HT.
I have had 5 Prostap3 injections so far. The last one is due July 2026.
My plums have shrunk to the size of half-sucked gobstoppers & I have zero interest in the "bedroom-olympics". I have a very supportive wife. My calfs & ankles swell up on occasion & I've put on a stone in weight mainly on my belly. I can handle that coz I was a very fit skinny-minnie anyway. My weight hasn't changed for 6 months, so I think I have plateaued there. And only a titchy increase in moobs & brain-fog on occasion. I have a very physical job which stood my in good stead for the op. I returned to full-time work 6 months after the op in May 2024 I was feeling that good. After 12 hours of graft I'm a bit tired and achy, but other than that I'm doing pretty good.
All-in-all I think I have gotten off quite lightly compared to a lot of other blokes. My local Maggies has been a god-send and I have met some great blokes I would never had met before who attend the monthly "Walnutless Posse" meetings.
Cheers,
-Tony.
Edited by member 03 Sep 2025 at 13:57
| Reason: Got me RTs & HTs mixed up.