A place to have a chat.

Hi Tony. 

Thanks for your story. It’s great we are getting a little more footfall in the Pub.

Ive just updated my thread this morning as I’m back in hospital. 

Take care chaps

Phil

My feet are worse, spilt hot candle wax over the left foot and didn't notice till someone told me. So I'm a bit wobbly at the moment, losing my balance and dropping things a lot. Loading and unloading the dishwasher has become a much noisier experience.... "crash BUGGER!...whoops... crash...ARSE!" etc.

I said earlier I'm going on a campervan trip with my mum in a couple of weeks, weeeeell its kind of grown and now we're doing a tour of the Outer Hebrides with my sister as well. Its going to be fun, got my sister on the van insurance so she can help me with the driving. Quite a lot of miles being driven. From me in Derby to them in West Kilbride is about 5 1/2 hours. So going to start off early, then the beauty of having a camper van is I can stop for a wee or cup of tea and a lie down whenever I want!

To all those who sponsored me - thank you!  James and I made it from Trafalgar Square in London to the Arc de Triumph in Paris arriving yesterday afternoon in a tad under 24 hours…. with 11 minutes to spare!  It was one hell of a ride with a headwind most of the way down and some fairly nasty downpours.  This little cycling venture of ours has now raised just shy of £19,800 so far between the 2 of us from all sources for Prostrate Cancer Uk - not bad for a days work and hopefully a deserving cause.  

Thank you for your huge support - it’s really meant a lot to me and has been truly humbling receiving so many messages of support.  This cancer affects so many lives.  Every little counts hopefully!

Thanks again!

Hi Tony, 

Fantastic achievement, well done!

Cheers, 

Kev.

I’ve probably posted this in the wrong place! Just feeling so frustrated. Husband 51 diagnosed with stage 4 PC, Sept 24. Bone mets on pelvis but no lymph node involvement. A year on and he’s on 3 monthly injections and Enzalutamide after having been taken off Abiraterone due to ALT levels being too high. Fatigue, hot flushes and zero libido all the order of the day. Oncology appointment beginning of October which just feels pointless. Last appointment we asked if any other treatment plan being considered, not at the moment. Just doesn’t feel enough when I read of others getting radio/chemo etc. Tbh just needed a bit of a vent tonight and although I have friends and family to talk to it’s just too hard sometimes. Knew folk on here would probably understand X

Thanks Adrian. Just needed to get it out. F&F are great but they just don’t get it. Just exhausted, drained and quite frankly p****d off. Husband a firefighter, spent his life saving and helping others and it just feels like they’re not doing enough for HIM. I actually said the words at the last appointment “Is this it, is this all he gets?”. Can’t really even remember the response but know it wasn’t any other treatment options. I wanted to go private but hub says no. Feel like he’s just so philosophical about it and it’s me that’s throwing my toys out of the pram. I’m not deluded I know that incurable means it’s not going away but I also know from being on here that they are plenty of men in a similar situations who are still here many years after an incurable diagnosis. Again, I don’t really need an answer just needed to offload it to folk that would get it! 

Men and their partners who are dealing with stage 4 prostate cancer have my utmost respect. At one time, it looked like mine had spread further a field. For that period of time, me and my wife's lives were turned upside down. We were frightened and felt helpless. Family and friends didn't seem to have a clue what we were going through. Professionals often seemed uncaring, we felt like we were just a number that needed to be dealt with then ticked off the list.

It's great that organisations are making people aware how common the disease is but unfortunately this can lead a lot of them almost trivialising it. Everyone seems to know someone who has had the disease, made a complete recovery, and can still 'shag for England', and most annoyingly they think that telling you this will make you feel better. 

Without experiencing the disease most people have no idea how prostate cancer can impact lives and the enormous pressure it can put on relationships.

PS: Did you both ever get out touring in your van?

Edited by member 11 Sep 2025 at 09:37  | Reason: Additional text