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Prostate Cancer UK Online Community  »  Search

Refine your search for "nanoknife"

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Nanoknife (IRE) 4 replies
Nanoknife / IRE Focal Therapy Clinical PA-RT Trial 14 replies
Focal Therapy Irreversible Electroporation (IRE or Nanoknife) 21 replies
Treatment options - all experiences and nanoknife 3 replies
Nanoknife - anyone with recent experience? 4 replies
Treatment options especially interested in Nanoknife 9 replies
NanoKnife Early US Results 0 replies
nanoknife v cryotherapy 7 replies
Nanoknife UK 3 replies
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User
Posted: 30 Mar 2026 at 17:16

"All published work has to clearly declare them, and all papers are reviewed with this information in mind. All clinical trials have to be registered in advance and it is not allowed to cherry-pick the best data."

Hi McLarenFan71

Briefly;   

It is quite understandable that you have developed trust in your fellow scientists and the medical team who treated you successfully, many men will have good HIFU outcomes.  This matter is about distortion in information provided to patients, failure to declare conflicts of interest and manipulated research under industry financial influence. Your confidence is not born out in the following studies which reveal widespread industry bias in research studies:

1: Flacco ME, Manzoli L, Boccia S et al "Generic versus brand-name drugs used in cardiovascular diseases: an updated meta-analysis"  (Journal of Clinical Epidemiology, 2015; 68: 811-20)

2: Stamatakis E, Weiler R, Ioannidis JPA "Undue industry influences that distort healthcare research, strategy, expenditure and practice (European Journal of Clinical Investigation, 2013 43: 469-75)

3: Ioannidis JPA "Evidence-based medicine has been hijacked: a Report to David Sackett." (Journal of Clinical Epidemiology 2016: 73: 82-86)

4: Fabri A, Lai A, Grundy Q, Bero LA "The influence of sponsorship on the research agenda: A Scoping Review"  (American Journal of Public Health 2018 108: e9-16)

5: Lundh A, Lexchin J., Mintzes B et al "Industry Sponsorship and Research Outcome" (Cochrane Database of Systemic Reviews 2017; 2" MR000033)

6: Rasmussen K, Bero L, Redberg R et al "Collaboration between academics and industry in clinical trials: cross sectional study of publications and survey of lead academic authors. (British Medical Journal 2018; 363: 3654)

Im pleased that you had a good experience with Nanoknife and thank you for your comments.  As Dr McCartney  GP and academic says in the latest episode of :Money Influence and the NHS- Episode 2 "If your MP wants to build a Motorway, it would be reasonable for constituents to know whether they had shares in the construction company appointed, or indeed in the land that had now become valuable and its easy to find out, all MP's have to make declarations on a publicly available Register of Members Interests but, if I am a patient I am  unfairly ignorant"  

https://www.bbc.co.uk/sounds/play/m002t1j0

I have not cherry picked studies as you suggest, Ive spent months searching all research papers I could find covering post-HIFU failure partial ablation only.  The blatant manipulation of results, particularly in the Guillaumier study as exposed by Thompson in 2020 should have left no doubt to anyone of the influence of industry upon research which underpins the false picture of the efficacy of the HIFU Device presented to prostate cancer patients; 

https://evtoday.com/news/five-year-results-published-for-sonacares-sonablate-hifu-system-to-treat-prostate-cancer

Research studies do indeed state the links to industry but there is no way of knowing if payments for services like 'medical consultancy' are proportionate to services or are inducements for malpractice. This is the issue I have written to my MP about calling upon measures by the Secretary of State to expose the bad apples.

Important:  Please write to your MP concerning the need for: stronger rules on conflicts of interest; independent oversight of patient information; potential parliamentary scrutiny and consideration of a UK equivalent to the US "Sunshine Act'.

Edited: by member 31 Mar 2026 at 07:36  | Reason: Not specified

Read conversation
    User
    Posted: 29 Mar 2026 at 08:55

    I just want to provide some counterpoints to the very negative statements about HIFU (and by extension other forms of focal therapy) in this thread.

    Most importantly, as a scientist, I wanted to comment on the argument made above that HIFU leads to worse cancer recurrence rates than people are told. It is vital that you read the literature carefully, as HIFU has been used in a number of different ways:

    (i) As a focal therapy for patients with localised cancer

    (ii) As a whole gland therapy for patients with more advanced cancer

    (iii) As salvage therapy for those who have had other treatments but have recurrent cancer

    The outcomes in each of those are very different, and broadly, the NHS only recommends HIFU should be used in (i), with low grade, early stage, localised cancers. If this protocol is followed then outcomes are exactly as stated by the clinicians. However, many papers in the scientific literature discuss examples of HIFU use in the other settings, where outcomes are worse.

    You cannot simply roll all HIFU papers together and assume they are all reporting the same thing. It is vital when looking at published outcomes that you only look at papers where the enrollment criteria are THE SAME as those currently recommended by NICE. Indeed, part of the reason HIFU is limited to low-grade, early-stage, single-focus is because of the papers showing worse outcomes when used on more advanced tumours. 

    It is therefore very misleading to lump together all of the historic literature to try and come to broad brush conclusions about a technique that has been used in very different ways.

    That said, HIFU (and other focal therapies) are obviously not as established as radical prostatectomy (RP) or radiotherapy. If you want greater certainty of outcome, then selecting those modalities is probably better. However, many men have RP and still get recurrent cancer (20-40% get biochemical recurrence within 10 years). Focal therapies do offer much lower risk of side effects and actually, if used on low-grade, early-stage, single-focus tumours, the recurrence rates at 5 years are similar to those after RP.

    I acknowledge that some men will have bad experiences with any therapy, and have every right to be heard. But it is also important to present scientific evidence fairly and not to push an agenda.

    As for HIFU making radical prostatectomy slightly more difficult as a result of scarring, potentially impacting to a small extent on impotence (but not incontinence) all patients undergoing HIFU are now informed about this.  However, surgery is still much easier than after radiotherapy (where it is considered essentially impossible). Previously patients may not have been informed about this, but that was because HIFU was new, and few men would have gone through salvage treatment after HIFU. However, all of those patients were informed that it was a new technique, which has associated risks, and that longer term outcomes were less certain.

    [I should note that I recently had Nanoknife treatment of prostate cancer on the NHS, and for me, with the type of cancer I have, and the lifestyle I want to live, this was, in my opinion the right option. Nanoknife is milder than HIFU and works on anterior tumours which HIFU does not. I was informed the treatment was only just past experimental stage and that longer term outcomes were therefore less well-known. I was informed that RP would still be an option should the cancer return, and that evidence currently shows that for Nanoknife this is not significantly more difficult that standard RP, but that it was not without risk.]

    Finally, on conflicts of interest, these exist in many areas of experimental medicine. There is certainly a need to manage them robustly. All published work has to clearly declare them, and all papers are reviewed with this information in mind. All clinical trials have to be registered in advance and it is not allowed to cherry-pick the best data. One of the reasons that those closest to the technology have the best outcomes is that they tend to apply the best experimental technique, as they are the most experience, and also select patients the most carefully, as they have the most data about those who benefit the most. This is not a conflict of interest - this is simply how best practice evolves in terms of using a new technique in the clinic. For example, those who get the best results in robot-assisted radical prostatectomy are those who have used the robots the most (all men are advised to ask how many RPs a surgeon has performed). Most of these high-users of robot-assisted RP are those who have worked alongside the companies that make the robots because they were the pioneers of the technique. This is just how medicine works at the cutting edge. So yes there is a need for conflicts of interest to be as robustly managed as possible, and yes there might be some failings, but this is not specific to HIFU or other focal therapies and applies across all areas.

    Read conversation
      User
      Posted: 19 Mar 2026 at 07:53

      Hello McLarenfan

      I, too, am a scientist (physicist).  There are some papers that talk about the generation of antibodies with nanoknife...  but as you say, it is early days.  I am also a supporter of 177Lu treatment as it appears to have had very promising results in my case - although 177Lu treatment does not always work well.  

      All interesting and potentially beneficial treatments for this PCa.  Please do keep us updated with your story.

      All the best

      Crispin 

      Read conversation
        User
        Posted: 17 Mar 2026 at 15:11

        Thanks Crispin

        Although I'm a scientist and had read up lots on Nanoknife, I hadn't come across the potential prompt it gives to your immune system. Your message prompted me to check it out and yes...

        "When NanoKnife destroys the tumor cells, it creates permanent nanopores in the cell membranes, leading to cell death (apoptosis) and releasing tumor-specific antigens. This process alerts the body's immune system to the presence of cancer cells."

        Although it should be noted that the clinical evidence for the benefits of this remain at a very early stage.

        Very interesting!

        Read conversation
          User
          Posted: 17 Mar 2026 at 15:02

          Hello

          The other 'advantage' of nanoknife its that it is meant to develop antibodies for your immune system.  

          I too had catheter problems after electrochemotherapy (an advanced version of nanoknife to remove the whole prostate).

          I encourage you to post here as time passes to indicate how you are progressing 

          Keep strong 😊

          Crispin

          Read conversation
            User
            Posted: 15 Mar 2026 at 17:18

            Reading the forum, Nanoknife experiences are less discussed, as it is a relatively recent approach to treating localised cancer, and I thought it might be useful to share mine. The primary advantages of Nanoknife are its ability to reach tumours anywhere in the prostate, and the relatively low level of long-term side effects. It's worth saying my experience was on the more challenging end of recoveries, but I know it would have been useful for me to read this.

            With a family history of prostate cancer, I started getting PSA tests when I was 50. I'm now 55 years old, and have just had treatment.

            My PSA when first measured in early 2021 was a suspicious 3.5, but rectal biopsy showed nothing. This rose to 5.5 at diagnosis in early 2024, when transperineal biopsy indicated a Gleason 6 tumour (with 4 positive cores out of 16). Given the localised nature of the tumour, low Gleason score, and my age, I was offered a referral to London for potential focal therapy (I'm based in Yorkshire). I went for active surveillance with a potential view to focal therapy later on.

            By late 2025, my PSA had risen to 7.2 and there was also some evidence of minor tumour growth by contrast MRI, which led to a little suspicion of some Gleason 7 character. The tumour was largish at 12mm in size, and therefore even as a diagnosed Gleason 6 met the threshold for focal therapy. As the tumour was in the anterior region, Nanoknife was offered, and I decided to go ahead.

            The procedure took place in early 2026 and was straightforward clinically, requiring a day visit to the hospital, general anesthetic and then discharge with a catheter.

            I hated having the catheter in, and was pleased when after 6 days, it was removed. However, unfortunately, I was completely unable to pee. I was offered the opportunity to self catheterise rather than replace the in-dwelling one. This sounds awful, but it was not as hard as I thought and gave me much more freedom. Still, I was totally freaked out by the complete urinary retention as I hadn't expected it. Reading around, it turns out it happens in about 5-10% of nanoknife cases. In my case, the tumour had been close to the urethra, and the irreversible electroporation treatment went all around it, so perhaps it was not so surprising - it would have been nice to feel more warned.

            In honesty, I was so stressed and upset at my trial without catheter that I cried - my reason for choosing Nanoknife was to avoid urinary problems, and I thought something could be seriously wrong. The nurses were lovely all though!

            The 1 week MRI confirmed there was a lot of prostate swelling and oedema, probably explaining the retention. More pleasingly, it also confirmed that the tumour had been successfully targeted with good margins. 

            After another week, urination started a little, presumably as the swelling went down. During the next week it improved, I had a bladder scan to check I was voiding fully, which I was, and by the end of 3 weeks post-surgery, I felt more confident with urination. By 5 weeks, I was feeling good with it!

            I did have quite a lot of urgency associated with urination over these weeks - but this was something I fully expected after the procedure, and has gradually become more manageable over time. I have also been able to hold onto increasing volumes in my bladder before having to go.

            Through all of these unexpected urinary issues, the rest of my recovery was good. I was able to return to work within 2 weeks and have felt very well in myself. Pleasingly, my erections are also really good and that side of things seems good overall.

            In summary, I am really pleased Nanoknife was an option for me. I have fingers crossed for continued cancer remission (although of course that is a journey with ongoing screening - and lots of options if it does recur). I am pleased to have retained full continency and potency. I just wish I had known the possibility that recovery could be a little bit slower than expected, but that this was not necessarily the end of the world. That's why I'm writing this, for anyone going through Nanoknife, as it would have been helpful for me to read.

            Read conversation
              User
              Posted: 22 Feb 2026 at 13:17

              I was diagnosed with Prostate cancer, on the day I was meeting consultant, David Cameron was on TV extolling the Naonknife treatment that had cured him,

              So can I have NanoKnife focal therapy - sorry not available on NHS Wales, only private

              OK 2nd choice can I have HIFU - sorry not available on NHS Wales, only private

              OK can I have Cryotherapy- sorry not available on NHS Wales, only private

              you can have Radical Prostatectomy (DaVinci) ..but not best suited to me

              or Radio Therapy + HT pre & post treatment.

              OK .. can I have MR-Linac   Real time tracking with MRI image, very accurate, very low collateral damage.….- sorry not available on NHS Wales, only NHS England or private  ( ~£45k)     
              It is your right to request treatment cross border in NHS England  …. Christie’s NHS Trust allow NHS Wales patients.    No, all requests for outside treatment are rejected as no funds.

              My option is Volumetric Modulated Arc Therapy (VMAT).     This is effective, but can damage the bowel, with wonderful terms such as anal-leakage for 6-9 months.

              However good news, you can have a rectal spacer gel injected, this puts a space between bowel & prostrate so bowel does not get irradiated in collateral damage.   OK can I have that please …. sorry not available on NHS Wales, only private  (£8k)    It will be performed by the NHS urologist who has been treating me.

              Feels like NHSWales is a 2nd class service.


              So my Q would be, is PROSTRATE CANCER UK able to assist in obtaining treatment in NHS England or using Private facilities.   I’m retired, with no medical insurance.

               

              Read conversation
                User
                Posted: 07 Feb 2026 at 08:04

                Hello Murdock

                You mentioned Nanoknife in one of your posts ...  is this still an option?  You will still have the catheter aspect to deal with -  but the surgery aspects are minimal...

                 

                Courage

                Crispin

                Read conversation
                  User
                  Posted: 28 Jan 2026 at 19:19
                  Hi Trev,

                  Very few men have Cryotherapy in the Uk and those that do often have it because HIFU cannot reach the tumour or Nanoknife is unsuitable for their Focal Therapy. So you may not get many replies from people who have had it. However, I can assure you that some men are similarly affected by urine frequency and urgency due to Radiation treatment. I was one of them and like you had to get up up to 8 times a night at the peak but this gradually reduced until about four weeks after RT ended I was back to my prior treatment once a night number. Efforts are made with Cryotherapy to protect other parts from the ice ball that damages the tumour but as with RT it can irritate the bladder. As with so much about PCa and it's treatment, the effects can very considerably from man to man. When I had HIFU I was very uncomfortable while the Catheter was in place but quite quickly resumed my normal urine visits after it was removed about a week later.

                  Barry
                  Read conversation
                    User
                    Posted: 27 Jan 2026 at 09:05

                    Hi Mick

                    It a totally brain blower. I sat down and reasoned that it’s fundamentally cancer at any stage so pathologically capable of metastasis although less likely at early stages. I originally had symptoms back as early as ~2013. Then June 2015 had blood in semen which set off alarm bells for me. Docs were adamant I was too young to have cancer. PSA started upward velocity July 2019. Moved to PSA bloods and 3T mpMRI  then biopsy which came back T2C. Had it out Nov 2019 and never looked back since. 

                    Had I been sure it was cancer back in 2015 I might have considered early surgery then…..but then again robotic surgery had only really been a thing since then and retzius sparing approach ~2017 and neuroSAFE shortly after. For me it made sense to get it out when there is high degree of assurance it’s local. Talking to my consultant a few years back I asked why PCa tends to develop in anterior (outside) area of the prostate. He said it isn’t fully understood but something maybe associated with gland type. 

                    This is an interesting discussion with Prof Mark Emberton (UCLH) where he touches on the concerns around biopsy and potential mets(51m40m): https://youtu.be/Jigoy-1-aXw?

                    I guess this becomes more of a concern with repeated biopsies.

                    Hopefully at some point diagnosis will be possible using biomarkers and scans only. 


                    It’s not an easy decision as I looked at all sorts including proton beam, laser, nanoknife and hifu. Hopefully all the info from all angles on the site will help.

                    Please shout us anytime if you have any questions etc.

                    simon

                    Edited: by member 27 Jan 2026 at 09:24  | Reason: Not specified

                    Read conversation
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