Ido4 - I spoke to someone at the Pelvic Radiation Disease Association about my symptoms. I was initially diagnosed with Radiation Proctitis.
The lady at the PRDA said that most hospitals are useless at managing it. She warned me not to see a surgeon. When I asked my Oncologist what the plan was, she said, 'I'll speak to one of the surgeons' .
I politely declined and asked for a referral and got a referral to a specialist in Harrow recommended by the PRDA. That doctor was fantastic.
They did the SEHCAT scan for bile salt reabsorption. Mine came back borderline. She said she could start me on medication for it but I opted for imodium and normacol. It has worked.
The PRDA has a list of gastroenterogists who accept referrals for suspected PRD. Might work differently in Scotland, but I had no problem getting a referral to an out of area hospital.