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Salvage radiotherapy

User
Posted 04 Apr 2023 at 19:31

Ido4, great news on the PSA, hope you get the bowel sorted.

Thanks Chris 

User
Posted 04 Apr 2023 at 19:36
Nice one and best wishes / good luck 🤞
User
Posted 04 Apr 2023 at 19:57

Good news re PSA.  Hope they sort out yhe gastric issues.  Have you been seen by anyone yet ?

User
Posted 04 Apr 2023 at 22:36

Hi Ulsterman, I haven’t seen anyone yet, I’m on a waiting list! I had a letter asking if I still wanted to be on the list to which I replied yes. My GP hasn’t been much help in expediting this either. All very frustrating. 

Ido4

User
Posted 04 Apr 2023 at 23:32
Great news on the PSA.

Hope you get to see someone soon on the bowel issues x

User
Posted 01 Sep 2023 at 14:15

Hello Ido4,

I just wanted to thank you for your posts and updates. My PSA has risen above 0.2 post surgery and I want to learn about options and hear about other men's journeys. I hope you are doing well.

Tim

User
Posted 01 Sep 2023 at 16:24

Some physicians go like "Let's wait and check PSA again and see how it's going". Be watchful. When my hub got PSA 0.2 , two or three years after RP, that was just what the urologist said. Thankfully, a different urologist saw him the following appointment. At that moment PSA was over 0.3 and he was referred to onco. Then given PSMA PET SCAN, two spots clearly located,  therefore easier to fight them. He was put in HT and given RT. 

Still in HT . Last PSA this week 0.01

Next appointment with both onco and uro in 2 weeks.

Good luck.

 

 

 

User
Posted 01 Sep 2023 at 16:39

Thanks for the info. I'll keep that in mind.

User
Posted 03 Sep 2023 at 20:20

Hi Tim, sorry to read your PSA is rising. Did you have prostatectomy May 2022?

I am doing ok thanks. The salvage radiotherapy has left me with radiation proctitis which affects my bowel but I don’t regret having it as my recurrence was very high grade and I would have been on HT for life. 
I had a PSA test 25/8/2023 so will get that result this week sometime.

Hope you can decide on your next move. Have you had an MRI to check out what’s going on?

Best wishes,

,

 

Ido4

User
Posted 03 Sep 2023 at 23:18

moved to other thread

Edited by member 11 Sep 2023 at 13:29  | Reason: wrong thread

User
Posted 08 Sep 2023 at 15:40

Latest PSA <0.1, great. My mean cell haemoglobin is slightly raised above reference range. Any idea what that could indicate?

Edited by member 08 Sep 2023 at 15:41  | Reason: Not specified

Ido4

User
Posted 08 Sep 2023 at 17:55

Ido4 , great news on the PSA ,long may it continue, no Idea on the haemoglobin.

Keep going mate. 

Thanks Chris.

User
Posted 08 Sep 2023 at 18:54

Thanks Chris.

Ido4

User
Posted 08 Sep 2023 at 18:54
User
Posted 08 Sep 2023 at 19:26

Thanks Lola

Ido4

User
Posted 09 Sep 2023 at 14:51

Hi ido4,

Great results long may it last, sorry i have never heard about the other result.

Regards John.

User
Posted 10 Sep 2023 at 09:58

Thanks John. 

Ido4

User
Posted 11 Sep 2023 at 10:09

Great result Ido4

Best wishes, Arthur 

User
Posted 11 Sep 2023 at 16:06

Thanks Arthur, hope you’re doing ok.

 

Ido4

User
Posted 08 Oct 2023 at 06:44

May I ask....  After your 2 years of HT, how long did it take for your hot flushes...muscle pain... brain fog.... and libido to come back ?

I pretty much been through the same scenario as you and just finished my 2 years HT. Hence my question...

 

 
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