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Salvage radiotherapy

User
Posted 09 Oct 2019 at 12:11
Great news. Looking good all round
User
Posted 09 Oct 2019 at 18:55
Great news. Keep at it

Bri

User
Posted 06 Jan 2020 at 14:30

I thought I would update this thread since I have latest PSA result plus I saw my oncologist this morning.

PSA measured 30/11/19 is <0.1, happy days. The oncologist today was very happy with things as they stand.

He has cautioned that I am not cured but because the PSA is <0.1, 9 months after HT ended he has moved me to 6 monthly reviews by letter rather than face to face appointments. He has ensured I still have the telephone number for the specialist nurses and should get in touch if anything changes.

I have been here before so am naturally cautious too but also very happy that PSA is still undetectable.

I feel so much better off the HT so hope that I stay off it long term.

Keep fighting.

 

 

 

 

Ido4

User
Posted 06 Jan 2020 at 14:53
That's excellent news. Delighted to hear it!

Best wishes,

Chris

User
Posted 06 Jan 2020 at 15:21
Really pleased for you mate. What a relief hey !
User
Posted 06 Jan 2020 at 16:56

So pleased for you - happy new year!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Jan 2020 at 17:07
Missed this. Nice one, Centurion!

My next test is in about four weeks. I hope get the same after my last dissapointment!

User
Posted 06 Jan 2020 at 18:10

Thanks CC,CJ, Lyn and PP. The relief on my wife’s face is fantastic to see.

We we’re chatting on our way to the cancer centre about it being almost 5 years since diagnosis. 4 of those 5 years have been either in treatment or attending appointments with oncology or urology.

I am by nature cautious so won’t be assuming the fight is over but it’s good today.

PP, I have everything crossed for your next test.

CJ, I am thinking about you as treatment will be resuming reasonably soon I guess. 

Ian

 

 

Ido4

User
Posted 06 Jan 2020 at 19:03
Cheer Ian

It’s been three and a bit years for me. Feels like five minutes. Just gotta keep looking forward, eh?

User
Posted 06 Jan 2020 at 21:46

Great news Ian!

User
Posted 06 Jan 2020 at 22:07

It is great news and let's hope the break from treatment is a long one.

User
Posted 06 Jan 2020 at 22:19

Pleased for you, Ian.  Happy new year.

ulsterman

User
Posted 06 Jan 2020 at 22:24

Ido4

Great news on the PSA, sometimes treatment and issues seem never ending.  Hope you get some respite from more treatment.

Thanks Chris

User
Posted 06 Jan 2020 at 22:50
Great news mate

Happy new year. Up your neck of the woods for a couple of nights next week

Bri

User
Posted 06 Jan 2020 at 23:44
😱 You are going across the wall, Bri??? Have you had your jabs?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Jan 2020 at 08:40

Thanks Bri, hope you enjoy your time away.

Lyn, πŸ˜‚

Ido4

User
Posted 07 Jan 2020 at 13:44

Originally Posted by: Online Community Member
😱 You are going across the wall, Bri??? Have you had your jabs?

The Scottish blood flows through my veins Lynn as my father was from Edinburgh and I have lots of family still living there πŸ˜‰

Bri 

User
Posted 07 Jan 2020 at 13:57

I was going to ask which wall Lyn was referring to?

Hadrian’s, the Antonine one or an imaginary one πŸ™‚

Ido4

User
Posted 19 Jun 2020 at 17:05

A long update, apologies. Good news re PSA, not so good news re an apparent blood clot.

Friday 8th May 2020 I woke up with double vision and had to lie down after attempting to get up.

I ignored it all morning as best I could but decided to telephone optician to discuss it.

Immediate urgent referral to the Edinburgh Eye Pavilion. After getting through temperature checks etc. I had a thorough check which showed my left pupil was sluggish and left eyelid drooped plus movement in my left eye seemed limited. Conclusion was the third cranial nerve had been disturbed possibly by a stroke. So it was off to the Royal Infirmary where the doctors agreed left pupil was sluggish etc. ECG, head CT and head angiogram performed. No bleed observed, phew, but I now needed to see a neurologist for further tests.

The neurologist was of the opinion I’ve suffered a microvascular blockage interrupting the blood supply to the third cranial nerve resulting in double vision. He was also a bit concerned about my cancer history and was going to contact my oncologist. He advised me to start taking 75mg of aspirin daily as a precaution against further events. He was also concerned about Myasthenia Gravis which is an autoimmune disorder, certainly don’t want that. I haven’t heard back about the blood test for that so assume it was negative.

Six weeks on I still awaken with double vision, once I stand up and move it resolves after a few minutes but comes back again if I close my eyes for more than a few minutes. Apparently most cases resolve after a few months but some don’t.

I have had a raft of blood tests on Tuesday 16.6.2020 which included PSA, cholesterol and fasting sugar. My PSA is still <0.1 (yippee), cholesterol is 5.4 or so which is above range so waiting to hear back from GP who wants to get my blood pressure and cholesterol within range given what has happened.

I must admit I thought about cancer spread and got myself wound up about that…….

 

Ido4

User
Posted 19 Jun 2020 at 18:50

Ido4

Great news about the PSA. The other problems  don't seem too good, but sounds like you are being looked after.

Thanks Chris

 
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