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Salvage radiotherapy

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User
Posted 19 Jun 2020 at 19:29
Ian

Good news about the PSA. Sorry to hear about the eyesight issue. I hope it clears up. The good thing is you are being looked after. If you can get your BP and cholestorol under control through exercise and diet changes that will be far better than pills. I managed to get mine down from pre-hypertenstion to the middle of the good range over time by doing that. I feel a lot better for it. Hope you will too.

User
Posted 19 Jun 2020 at 19:36
My fingers are all crossed up hoping for you. It’s one thing after another isn’t it ? Best wishes
User
Posted 19 Jun 2020 at 22:43

Thanks Chris, PP, and a Chris J. I walked 122 miles last month so trying to exercise as much as I can. I found myself saying to the neurologist “I’ve had enough of ill health, my turn should be over”. 
I’d rather not go on more pills so any dietary or other life style advice would be welcome.

Thanks again for the good wishes. Much appreciated.

Ido4

User
Posted 22 Jun 2020 at 16:10
Hey

I have been struggling with weight and fitness for so long.

What turned it round for me physically was a commitment to some concrete goals:

Closing all my rings on my Apple Watch fitness tracker

Doing 10,000 steps a day

Starting and sticking with Couch to 5K. I am on week 5 and I can run two 15 minute intervals whereas on week 1 I could barely manage 30 seconds.

Diet wise I do intermittent fasting (18/6) a few days a week and try and cut out snacks. I drink only twice a month.

My biometrics (Resting Heart Rate, BP, Recovery Rate and whatnot) are all vastly improved.

Mental health is a lot harder. I am stressed to hell and beyond because of beinbg unemployed and having to dig into my long term savings. I think that is what I need to concentrate on.

Anyway, the key is baby steps and persistence. Get an Apple Watch or a Fitbit so you can track and feel rewarded with progress.

User
Posted 22 Jun 2020 at 21:07

Thanks PP. Sorry your having a rough time still.

Ian

Ido4

User
Posted 23 Jun 2020 at 19:09

Having been fortunate and enjoyed good health for the majority of my life, these past 5 years have been a real roller coaster for me ... prostate cancer, the nasty side effects of radiation, main heart valve replacement, several colonoscopy sessions ... and yes, like you I am now thoroughly deflated with it all. But we’re still in there fighting and I will always remain grateful when in the past I have received positive posts and good wishes from guys such as yourself on this very worthwhile site. So I really do wish you the best of luck with your latest setback.

User
Posted 24 Jun 2020 at 01:22
Sorry Ido, I completely missed this! Sounds horrible & scary - I hope they get to the bottom of it soon.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jun 2020 at 09:51

Thanks Lyn. I go to the Eye Hospital again 2/7. My GP is looking at blood pressure, cholesterol etc. 

Ido4

User
Posted 04 Jul 2020 at 13:29

Thanks so much your posts really do help. I had surgery for PC 07.19. I was dry after 6 weeks & E.D almost there but no problem with a pump & ring. After a year, virtually no side affects & living life to the full .My PSA since surgery 02 / 04 / 07 / 12 / 17 . Now recommended Radical R.T, Prostate bed & Lymph nodes. I had the scan & tattooed on Thursday. Waiting for treatment plan, R.T. due to start around the 27th. Going through hell again. 

User
Posted 04 Jul 2020 at 13:54

Hi Kamsdevon, sorry you are having to go through salvage radiotherapy now, hope it sorts things out for you. Are you being out on hormone therapy too or just having radiotherapy?

Was your last PSA 0.17? 

Ido4

User
Posted 04 Jul 2020 at 14:24

Hi Ido yes 0.17 , no mention of hormones yet. 

User
Posted 04 Jul 2020 at 14:31

K

Like you had reservations about treatment. I was even sat on the anesthetic table being prepared for surgery and asking if anyone had changed their mind at such a late stage. A few months later I wondered why I had doubts. Three years later the PSA had risen and SRT was on the cards. 

Unfortunately the SRT has also failed. Have you tried to get any of the better scans to "try" and determine where the cancer might be. At such a low PSA detection may not be possible. 

Thanks Chris

User
Posted 04 Jul 2020 at 15:08

Hi Chris 1st video appointment with oncologist 23/6 then scan 2/7 . Thanks to all the information on here I now have a list of questions for my consultant. With such a low PSA I wasn't expecting RT.

Edited by member 04 Jul 2020 at 15:13  | Reason: Not specified

User
Posted 04 Jul 2020 at 18:46

K

No doubt they are looking at patterns and other data, not just the value of the PSA.

Thanks Chris

User
Posted 13 Nov 2020 at 17:29

Latest PSA result from blood draw 9/11/2020. PSA <0.1, undetectable. So pleased. Both Sandra and I were very nervous about this one. The stress never disappears. 

I’m now 3.5 years post salvage radiotherapy and around 21 months since the last three month HT injection.
White cells, lymphocytes and neutrophils all too low so will have to be careful as that makes me more susceptible to infection. 
Best wishes to all. 

Ido4

User
Posted 13 Nov 2020 at 18:00

Fabulous news.....relax and enjoy the weekend.

My husband had fraction 10/33 adjuvant RT today (RALP July ).

How long after the RT do they check PSA and does it go up to begin with sometimes?

Best wishes to you.

User
Posted 13 Nov 2020 at 18:19
That’s fantastic news for you both. Long may it continue mate. No the anxiety never goes away. I’ve been mostly ok as I never have PSA done anymore , but did spend the whole day in hospital yesterday which led to massive levels of panic - exactly what I’m trying to avoid. Not posted on my thread but updated profile. Just live every day and when Covid calms down live even more. Being on an acute Oncology ward brings it all to home. Just take care friend.
User
Posted 13 Nov 2020 at 18:35
Amazing news Ido!

You mentioned low lymphocites, I have this as well since I had SRT in February/March, remains constant around 0.6 x 10^9/L, any idea if it is related to SRT?

User
Posted 13 Nov 2020 at 18:41

Originally Posted by: Online Community Member

Fabulous news.....relax and enjoy the weekend.

My husband had fraction 10/33 adjuvant RT today (RALP July ).

How long after the RT do they check PSA and does it go up to begin with sometimes?

Best wishes to you.

 

Mine was checked halfway through SRT and every 3 months after that. My PSA went down rapidly but probably due to bicalutamide, RT takes about a year to be fully effective they said. So could go up initially I suppose...

User
Posted 13 Nov 2020 at 18:52

Ido4

Fantastic news,  that sounds very promising, think that calls for a celebration. Thank you for your support

Thanks Chris

 
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