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Invicorp

User
Posted 04 September 2017 15:42:06(UTC)

Would like to ask if anyone has had trouble getting a prescription for Invicorp (also known as AVIPTADIL)

I was first prescriped caverject (Alprostadil) and I experienced a lot of pain. After reading the
forums here I noted that a few people have managed to get Invicorp and seemed to get on with it really well.

I mentioned this to my GP, after looking at their list they prescribed it to me. It is really hard to get
hold of, but I managed to find a pharmacy that could source it and so I tried it. As other peolple found
it was a great success, a full erection, no pain at all and lasted around an hour.

I booked an appointment with my GP to get a repeat prescription, before I saw them I got a letter
from the surgery advising me not to get a repeat prescription. My GP had spoken to their resident
pharmacist and they had given that advice and "submitted a report for it to be reviewed by the prescribing
committee" and that I shouldn't get a repeat prescription for "safety reasons".

I am a bit racked off as it has took 8 months to finally find something that works, now I feel I have had the
rug pulled from under my feet. I don't mind a bit of caution, but everything I do with the NHS takes months.
Each appointment I have had with my ED clinic has been 2-3 months time. I think my todger will have fell off
from old age before I get this sorted out.

Has anyone else had this sort of experience?

Thanks

User
Posted 18 September 2017 18:46:33(UTC)

Visited the GP this morning after booking in with a more senior GP. I explained everything to him, leaving out the information I found on carriage costs being reclaimed from the NHS.

He looked at my records, had a look at the BNF entry for Invicorp, then gave me a repeat prescription for the 5 packs of invicorp.

Thanks for all your input folks.

Mark

Thanked 2 times
User
Posted 07 November 2017 13:57:56(UTC)
Let’s just clear up some factually incorrect information shared on this site misleading many people that could benefit from Invicorp.
Invicorp is licensed in the UK since April 2015 and has been approved for Use in Wales by AWMSG and recently All Manchester Hospitals by GMMMG . It is available through the NHS and as one contribution on this site says the company is not working with the NHS is a load of rubbish. The company that owns Invicorp is a Swedish company called Evolan Pharma AB and they are working hand in hand with the NHS. Invicorp has been approved and has been added to over 100 hospitals in the UK. More and more hospitals are adding Invicorp to their formularises daily. The company have changed their wholesaler in the UK to Alliance so it will be easier to get from chemist.
Thanked 2 times
User
Posted 09 April 2018 10:51:44(UTC)

Regarding the price of Invicorp. The cheapest places I've found online are pharmacy2u.co.uk, for £12/unit; and ofordonlinepharmacy.co.uk at £65 for 5. theonlineclinic.co.uk is much more expensive--£119.95 for five.

 

David

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User
Posted 04 September 2017 17:10:54(UTC)

It seems all injections are hard to source. I was the first pioneer on this forum to try Invicorp. Great success and zero pain. I turned up to my hospital 3 times to trial it as it's new , but each time they didn't have it. In the end I bought it privately. I know a man who gets it on prescription though. My local pharmacy couldn't even find it on their system so it's a bit of a mystery. But on the site I got it from it was cheaper than Caverject and Viridal so I don't think it's cost related. I'd be interested though if there is a safety concern obviously. I'm not needing it anymore and have great success with daily Cialis. But the Invicorp is the real deal isn't it !! Makes you feel like a real man again after the tragedy that is left from surgery. I'd just like to add that it is totally unsafe to use any medicine without your GP's approval. And mixing stuff is very risky also. I nearly fainted after mixing a Levitta with my Cialis. And never ever inject unless you've been shown how !




If life gives you lemons , then make lemonade
User
Posted 04 September 2017 21:04:14(UTC)
Gents

I've spoken to you both about this medication. It works for me.

For the benefit of others, like everything else, it seems to depend on where you live. My gp prescribes it on the NHS and I get it from pharmacy2u the online people. If you google it, you'll find different clinical commissioning groups have different rules for prescribing it.

Good luck.

Ulsterman
User
Posted 04 September 2017 21:46:47(UTC)

There are two main issues with Invicorp - the company is owned outside the UK and they have declined to work with the NHS on purchasing arrangements which makes it more expensive to community pharmacies (who then pass that cost on to the NHS) - and they have had two opportunities to present evidence of clinical effectiveness and failed to do so, as I understand it. So Wales has decided not to approve it and many CCGs in England have done the same.

ChrisJ buys his from an online supplier which is not able to pass the additional cost on to the NHS so there is no resistance. Ulsterman is in the same situation. In some areas, invicorp can be accessed by going on a 'trial' (still the best way for practitioners to get round licensing issues) but this is not possible in areas where the CCG has already decided against it.

Markac, my assumption is that the 'safety reasons' are actually the failure of the company to produce the clinical effectiveness data. Ask your GP if he is happy to prescribe if you promise to buy it online?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 05 September 2017 19:52:22(UTC)

Thanks for your replies everybody.

I spoke to my GP Monday morning. The problem is one of lack of information and guidance according to her. It is the associated pharmacist that has advised against prescribing a repeat prescription. She said she would be happy to prescribe it to me if she received a letter of recommendation either from my consultant or my ED nurse.

I contacted my ED nurse and she said she couldn't recommend it because they hadn't used it, although they were trying to get it on their books as it were, and hoped to do that soon. She also added that my GP could prescribe it because it was on the BNF - ,British National Formulary, however my GP obviously doesn't want to take the responsibility of prescribing it, in fact she said so to me directly.

Thank you for the suggestion Lyn, I may book an appointment to see one of the more senior GPs in the surgery and suggest this to them or even just to get a second opinion. Not sure it's a cost thing though as the price online was around £50 per 5 ampoules, which didn't sound so bad to me?

Thanks

Mark

User
Posted 05 September 2017 21:11:55(UTC)
Lyn

I do get mine from an online supplier, but I get it free on the NHS with my exemption certificate. I'm not sure if that was clear to everyone. Now I'm getting scared that some jobsworth at the CCG will notice and stop it! In any case Lyn, you're like a walking encyclopaedia - how in the world have you discovered so much? I love reading your very well informed answers. Thank you.

Mark

Maybe a chat with pharmacy2u to see if they have any advice?

Ulsterman
User
Posted 05 September 2017 22:18:01(UTC)

No I think maybe I didn't explain it very well. No need for you to panic Ulsterman. My understanding is that community pharmacies (your average Boots or Lloyds) somehow recharge the true cost of the meds prescribed on the NHS to the GP, dentist or local NHS. I think that is why hospital prescriptions have to be collected from the hospital dispensing chemist? But online pharmacies claim their money back a different way? There has been some kind of problem because the makers of invicorp refuse to sell it to NHS middlemen in the normal way so it costs the NHS more than it should, but online companies purchase the meds direct perhaps? That's my reading of it anyway.

Not an encyclopedia; just a researcher with insomnia and an irritating ability to remember useless facts. I am rubbish at pub quizzes, never know which actor was in which film and am rather useless at things like whether Manchester is east or west on the M62!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 05 September 2017 22:19:52(UTC)

Having said that, today I have managed to get from Leeds to Barcelona via a quick training session in Cumbria and then a manic drive down the M6 to Manchester :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 06 September 2017 14:38:18(UTC)

Lyn,

I agree with Ulsterman, your in-depth knowledge is amazing. I have done my own research after what you have said and I came across this link.

http://www.awmsg.org/awmsgonline/app/sitesearch?execution=e2s1

Cutting a long story short the 'All Wales Medicines Strategy Group' did an appraisal comparing Invicorp to caverject, including their own clinical trial. They came to the conclusion that Invicorp was equal in cost but had less occurrence of painful side effects that caverject and recommended invicorp as a treatment for ED in men where traditional treatments had failed. Then in July they overrode this recommendation with the following:-

"Aviptadil/phentolamine (Invicorp®) is not recommended for use within NHS Wales for the symptomatic treatment of erectile dysfunction in adult males due to neurogenic, vasculogenic, psychogenic, or mixed aetiology. The clinical and cost-effectiveness data presented in the submission were insufficient for AWMSG to recommend its use."

Also interesting was the following on an appraisal by the Doncaster Clinical Commissioning Group:-

http://medicinesmanagement.doncasterccg.nhs.uk/wp-content/uploads/2015/12/Invicorp-Prescribing-Guidance-V1.1-June-2016.doc

"Acquisition costs – whilst the basic acquisition cost of this preparation is similar to that of alprostadil injection there is a further unseen cost to the NHS. The unusual distribution of Invicorp, from the manufacturer, is via a non-standard mechanism leading to Community Pharmacy potentially obtaining it via a route that excludes the usual wholesaler processes. This can lead to an additional carriage charge being passed on to Community Pharmacy, which can then be reclaimed. This on-cost charge is not charged directly to the primary care prescribing budget but is however paid for by the NHS."

All this of course is what you are telling us Lyn, so I should just listen to you and not bother researching :-)

I will take both of your advice I think and book an appointment with another Doctor and see if they are happy to prescribe it me via pharmacy2u rather than the regular route.

Cheers

Mark

User
Posted 06 September 2017 18:56:46(UTC)

I have booked an appointment with one of our senior GPs, unfortunately could't get in til' 18th Sept. Got a rough idea of how I am going to approach this but I have plenty of time to work out the details!

User
Posted 06 September 2017 20:33:38(UTC)

Ha ha! I knew I had read about it but couldn't have told you where :-/ I think the Welsh meeting was the one where the company sent one representative but he didn't have any data with him.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 07 September 2017 09:19:23(UTC)

Interestingly a member on here who doesn't post very often is struggling to get Invicorp from my online chemist even though his situation is the same as mine. It is still being offered for sale to me but I've not bought any for a while. It's so silly as it seems to be a wonder drug. I was supposed to try it at Southampton but three times they let me down because of supply problems and / or lack of approval.




If life gives you lemons , then make lemonade
User
Posted 07 September 2017 11:36:45(UTC)
Chris,

Can I ask what price they charge privately? I note that it is offered to the nhs at around £48 for the 5 vials.
User
Posted 07 September 2017 12:29:54(UTC)

I use theonlineclinic.co.uk
They charge about £125 for 5 injections including the disposable syringes and needles. He has now been offered them today. You have to go through an online referral system and provide evidence you have been taught how to inject and also disclose other medications etc. On this particular site Invicorp is cheaper than Caverject




If life gives you lemons , then make lemonade
User
Posted 18 September 2017 18:46:33(UTC)

Visited the GP this morning after booking in with a more senior GP. I explained everything to him, leaving out the information I found on carriage costs being reclaimed from the NHS.

He looked at my records, had a look at the BNF entry for Invicorp, then gave me a repeat prescription for the 5 packs of invicorp.

Thanks for all your input folks.

Mark

Thanked 2 times
User
Posted 10 October 2017 16:46:54(UTC)
This is really interesting, I'd never heard of invicorp! It makes me wonder what else is around out there that might be of help to me. The only thing that I've found that works for me is Caverject. It does cause pain at times but is always at least uncomfortable for some time after use. But if there is another option, I would be willing to try it.
But the issue for me is availability. I cannot get Caverject at the moment. My GP prescribes it, four per month as per NICE guidelines, but my pharmacy hasn't been able to get any for me since June. Is it the same problem with Invicorp?
Any advice about getting Caverject would also be welcome.
User
Posted 10 October 2017 16:56:20(UTC)

There is still an ongoing licensing problem with caverject which is causing supply problems. Invicorp is a different company.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 10 October 2017 22:01:47(UTC)

It’s a sod tbh. Caverject only partially worked for me yet left me feeling like my penis had been slammed in a car door afterwards. Invicorp is utterly fantastic but I’ve only been able to get it private at £25 per shot. I’m lucky in that daily 5mg Cialis is good enough for all round happiness. Caverject has always had supply problems and it seems that Invicorp is worse. To be frank , whatever your age , most surgeons will happily destroy your sex life without prividing any reasonable aftercare without a thought in my opinion , as long as they get the cancer. They don’t have to live with it :-(




If life gives you lemons , then make lemonade
User
Posted 13 October 2017 12:45:48(UTC)
I suspect you know more about this than me and, if so, I'd welcome your comments. Caverject has been around for several years, it is listed in BNF, was supplied to me initially as a solution to my problems, so surely it has been through all the NHS hurdles over licensing etc?
At one time previously I had a problem sourcing it but did so within a month or so. Then all was fine with no issues at all until this summer. On the last occasion I heard via other users that the difficulty was that the manufacturer was opening a new factory or something of that sort so there would be possible supply issues pending the new production line becoming fully operational.
Either way it is disappointing not to be able to find the product and I was wondering if there is anything that I might do to strengthen a case for licensing, if that is the issue, or to source it elsewhere than the obvious high street chemists.
User
Posted 13 October 2017 13:30:27(UTC)

Can you not ask for Viridal on prescription ? It is EXACTLY the same medicine ( Alpristadil injection ) but a different manufacturer. It is available on NHS




If life gives you lemons , then make lemonade
User
Posted 22 October 2017 07:07:49(UTC)

Yes, just what I was thinking too, although I heard from elsewhere that there may be supply problems with this drug too. But lets see.

User
Posted 07 November 2017 13:57:56(UTC)
Let’s just clear up some factually incorrect information shared on this site misleading many people that could benefit from Invicorp.
Invicorp is licensed in the UK since April 2015 and has been approved for Use in Wales by AWMSG and recently All Manchester Hospitals by GMMMG . It is available through the NHS and as one contribution on this site says the company is not working with the NHS is a load of rubbish. The company that owns Invicorp is a Swedish company called Evolan Pharma AB and they are working hand in hand with the NHS. Invicorp has been approved and has been added to over 100 hospitals in the UK. More and more hospitals are adding Invicorp to their formularises daily. The company have changed their wholesaler in the UK to Alliance so it will be easier to get from chemist.
Thanked 2 times
User
Posted 08 November 2017 09:19:42(UTC)

PJN, there was no need to post in such aggressive style. If you had been a member for more than 1 day you would know that I do not mislead men who could benefit from treatments - completely the opposite. However, what I said about invicorp was factually correct - it is not NICE approved and so the CCGs / health trusts that have cleared it are each acting unilaterally. The all Wales commissioning group rejected it in June because the company sent a representative with no clinical data (the minutes of that meeting are a public document) but they did approve it a couple of months later. The point I was making (based on knowing many of the members on here and the struggles they have to get even the most basic ED treatments) is that if invicorp is not approved for GP (NHS) prescribing, men may have to go to online pharmacies. In the area where I live, the ED nurses can prescribe but GPs are not permitted to.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard


User
Posted 09 April 2018 10:51:44(UTC)

Regarding the price of Invicorp. The cheapest places I've found online are pharmacy2u.co.uk, for £12/unit; and ofordonlinepharmacy.co.uk at £65 for 5. theonlineclinic.co.uk is much more expensive--£119.95 for five.

 

David

Thanked 1 time
 
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