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Invicorp

User
Posted 22 Oct 2017 at 08:07

Yes, just what I was thinking too, although I heard from elsewhere that there may be supply problems with this drug too. But lets see.

User
Posted 07 Nov 2017 at 13:57
Let’s just clear up some factually incorrect information shared on this site misleading many people that could benefit from Invicorp.
Invicorp is licensed in the UK since April 2015 and has been approved for Use in Wales by AWMSG and recently All Manchester Hospitals by GMMMG . It is available through the NHS and as one contribution on this site says the company is not working with the NHS is a load of rubbish. The company that owns Invicorp is a Swedish company called Evolan Pharma AB and they are working hand in hand with the NHS. Invicorp has been approved and has been added to over 100 hospitals in the UK. More and more hospitals are adding Invicorp to their formularises daily. The company have changed their wholesaler in the UK to Alliance so it will be easier to get from chemist.
User
Posted 08 Nov 2017 at 09:19

PJN, there was no need to post in such aggressive style. If you had been a member for more than 1 day you would know that I do not mislead men who could benefit from treatments - completely the opposite. However, what I said about invicorp was factually correct - it is not NICE approved and so the CCGs / health trusts that have cleared it are each acting unilaterally. The all Wales commissioning group rejected it in June because the company sent a representative with no clinical data (the minutes of that meeting are a public document) but they did approve it a couple of months later. The point I was making (based on knowing many of the members on here and the struggles they have to get even the most basic ED treatments) is that if invicorp is not approved for GP (NHS) prescribing, men may have to go to online pharmacies. In the area where I live, the ED nurses can prescribe but GPs are not permitted to.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 09 Apr 2018 at 11:51

Regarding the price of Invicorp. The cheapest places I've found online are pharmacy2u.co.uk, for £12/unit; and ofordonlinepharmacy.co.uk at £65 for 5. theonlineclinic.co.uk is much more expensive--£119.95 for five.


 


David

User
Posted 13 May 2019 at 20:40

Hi Chris


I was looking into Invicorp but I noticed your comments about Cialis Daily. 


Do you manage to get hold of it ok?


my Urologist/Oncologist and. Psycho Sexual Therapist both suggested it. One for ED but also for urinary frequency. but the local CCG will not let my GP prescribe it. 

User
Posted 14 May 2019 at 06:52
The local CCG are trying to reduce and remove daily Cialis use despite it now coming out of patent and just being generic Tadalafil. They say there isn’t enough evidence worldwide to support its use which I feel is rubbish. It DOES work but there has to be visual and physical stimulation for it to work. I started morning erections again immediately on starting it. It can be bought online from DR Fox etc , so you could fund yourself for 3 months as a trial. It costs about £28 per month. If it works then you could write a begging letter to your gp
User
Posted 14 May 2019 at 08:08

Thanks for your reply.


when I first started Radiotherapy they said I should take half a Syldenafil twice a week for maintenance reasons. On those nights I only get up for the loo twice instead of six times usually. 


Therefore I am hoping for two things from Cialis Daily. 


As you suggest I have ordered a month to see if it works. There is no point in going to war over this if they don’t work. 


I will let you know. 

User
Posted 14 May 2019 at 08:20
Daily dose is still allowed in Leeds area if recommended by the ED nurse but not just on the GP or urologist's recommendation. Is there an ED service in your area? Or as suggested above, it must be worth a punt to write to the CCG pointing out that a) it has been recommended for your incontinence rather than just your ED and b) the postcode lottery on this is grossly unfair.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 14 May 2019 at 08:25

On Thursday I have a follow up appointment with a Psycho Sexual Therapist Dr. I will go through all this with her but she will probably only write to my GP to ask her to prescribe. 


I will see how it goes Thursday. 

User
Posted 14 May 2019 at 16:29

Just spoke to Oncologist/Urologist via a nurse to see if she would give me a prescription. She denied talking about Cialis Daily and has left me a prescription for Cialis 20mg. I sat in front of her and discussed Daily!!!!!  I wrote it down! 


The ED doctor suggested Viridal. Four months and I’m still waiting for it. They really don’t care do they. 


At my wits end. Giving up. Almost in tears here

User
Posted 14 May 2019 at 20:51
Don’t despair. Ask the chemist for a pill cutter and cut the 20mg tablets in half. How many are they prescribing - 4 per month? If so, take half a tablet every 3-4 days. If they are prescribing 8 per month, cut them in half and take every 2 days. Research data suggests that this is nearly as good as 2.5mg / 5mg daily.

I would still complain to the CCG though.

Is the psycho-therapist your area’s version of an ED nurse?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 14 May 2019 at 21:10

Hi Lynne 


Thank you for replying. 


I don’t know if you got the whole story. I have urinary frequency of about six times a night. When I take half a Sildenafil twice a week for maintenance purposes I only pee twice. 


Therefore the Cialis Daily was to help ED and urinary problems. 


I have taken the easy route and ordered 5mg on line. If it works I can argue about it and if it doesn’t then I’ve tried. 


I have contacted the CCG. 

User
Posted 16 May 2019 at 14:38

Just had a follow up appointment with Psycho Sexual Therapist, Dr Valentine. I was expecting “Sorry there is nothing else we can do”. I nearly didn’t bother going. 


It was actually brilliant, she talked about all sorts of things to go through. 


Next time she wants to talk to me with my wife. I thought as this is NHS two appointments was probably all I would get. 


Feeling so much more positive. 


 

User
Posted 16 May 2019 at 14:59
What an appropriate name, Dr Valentine! Is her first name Rati, the Goddess of lust and passion? 😉

Cheers, John.
User
Posted 16 May 2019 at 19:28
Brilliant news - our ED nurse was as much a support to me as to John
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 17 May 2019 at 11:43

As you can imagine, nothing has changed overnight but I feel better now than I have in well over a year. She is really looking after us. She is ringing in two weeks to see how we are going and then follow up in 3 months. 


I am also walking 5K Your Way next week. I feel like an 18 year old but where do you find one at this time of day?

User
Posted 05 Oct 2019 at 05:57

Hi Alan,


yes, I agree, Dr. Valentine is very good, she puts you at ease straight away and seems to really care about finding something that will work for you. 

User
Posted 05 Oct 2019 at 07:21

The problem is that her appointments are so erratic. My next can be anything up to 10 months away!!

User
Posted 30 Oct 2019 at 11:42

So true there Chris. 
I had some success with Cialis daily but the CCG will not let the GP prescribe them. 
I would like to try Invicorp but I need to wait months for my ED clinic appointment. 

 
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