Search results for "radium 223"

Well here we are 2 days now since the first Radium infusion. Just feel a bit tired but not sure of the actual reasons for that. 
Spoke to my GP yesterday about my taste and appetite and did a swab today for them to test. 

Im not eating much as Im not really doing anything to burn it up.

Hoping they’ll find I’ve still got the thrush and I can get antibiotics for it. It’s getting me down a bit. Forever tired and not fancying any food. 

Got to organise 3 blood tests every month now. 1 for the Zolandronic acid, 1 for the consultant appointment and 1 for the Radium… Hoping my palliative nurse can help out or it’s a trip to the hospital for each one. 

Anyway , gonna try to perk myself up a bit as it’s no good moping around. We don’t have a kitchen at the moment as we’re having it refitted. Nightmare… but lovely when it’s done. 

So onwards and upwards. Spurs on TV tonight so hopefully that’ll bring a smile to my face…. 

Cheers everyone 

Phil

Regarding writing stuff down when I was seeing my counsellor early on I wrote a short story/account of my childhood and let her read it. It helped me a lot writing it down and to get my timelines right. It made me understand my emotions about it better. Only she’s ever seen it and I’ve destroyed it now as it served its purpose. But it helped me a lot.

I love reading and read every night. But I also messed up my CSE Exams at school especially English. I moved schools beginning of 4th year and didn’t get my options so I kinda gave up ( girls were more interesting ) . My previous school was great but was only there 18 months before I moved again.

Luckily when I left school I went to a brand new college to do an engineering course and had spare time to do GCE English, Maths and Physics as well. Only 3 of us in the classes instead of 30 kids messing about. Had a brilliant year and burnt the candle both ends.. Worked in a pub at weekends for petrol money for my motorbike and to take me girlie out. 

I love chatting on here guys. Time for a doze now and I’ll blame it on the new Radium treatment..! 

cheers

Phil

Well here we are one day from starting my Radium 223 treatment. Had my Zolandronic Acid Friday afternoon which was easy. But have had a couple of days feeling even more tired than normal.

Also saw my palliative care nurse Friday afternoon for my blood test. Also I mentioned my taste is still not right. She recommended eating pineapple which I’m now trying out. I’m worrying now that the chemo has permanently damaged my saliva glands. Anyway we’ll see. 

Start on the Orgovyx tomorrow in place of the Degarelix. Got to be easier than monthly injection and it might even help a little bit with the cancer …! 

Been a bit emotional last couple of days too. I’m just not ready to check out yet.. Still got stuff to do . 

Kitchen fitters here tomorrow to start ripping out the old one . 2 weeks of no kitchen. Be nice when it’s done though. 

Oldest boy and family flying back to Jersey today. Been here with us after our week at Center Parcs. Been lovely but a bit tiring. Going to be emotional seeing them off as we can’t pop over there like we used to. Still waiting on my respiratory appointment to see about my collapsed lungs. May have to look at the drive to Portsmouth/Poole for the ferry crossing. 

So hope you’re all keeping good out there. 

take care 

Phil

Hi Phil.

yep fingers crossed it does some good. 

Registrar says my calcium measurements have always been pretty good and you can overdo it apparently. So I’ve got some pills just for a week then the Zolendronic acid infusion in line with the Radium. 

Feel good to have given you a boost as well. Can’t be easy with that journey every 4 weeks. You’re an inspiration to us all too 👍. 

cheers

Phil

Really sorry to hear this Phil. You have been truly amazing and I sincerely hope the Radium 223 works its magic and slows things down.  Enjoy your glass of wine and keep looking forward to spending time at Center Parcs with your family.

Always thinking of you xx

Hi Turkey2222… yes Southend hospital is my local and they’ve been good. Only thing was I was seen in July ‘17 with high PSA and they said all was ok but another PSA test in November and then the proverbial hit the fan and was diagnosed in January’18. So wonder what could’ve been done in the few months before I was finally diagnosed. 
Who knows… 

Hope all goes well for you 👍

Edited: by member 24 Apr 2025 at 16:08  | Reason: Not specified

So sorry to hear of the further spread, hopefully the radium will help. 

best wishes Ann

I think you are Southend, as are we. It’s reassuring they are looking after you so well, and a positive that they have the radium 223 and other things to support your skeletal issues. I haven’t looked this far ahead but will read up on this.

Enjoy your well deserved wine, very best wishes to you and yours.

Hi chaps. Another update from my latest consultation. 
A lot to take in… 

PSA up to 40 from 30 . Not so bad considering I’m only on the Degarelix and Dexamethazone as treatment. 

Bone scan from 20th March shows quite a lot more involvement now. There is now spread in ribs, spine, neck, skull, shoulder blades, collar bone, hip, thigh and left knee…….! So probably rules me out of training for a marathon 🤣

So they are starting me on the Radium 223 in a few weeks. plus bone building pills and infusion. 6 sessions 4 weeks apart. 

Also going to try out some new Degarelix pills instead of the injection. They’ve only had them 2 weeks so bit of a trial. But hoping it’s better than the bloated belly and pain with the injection.

Staying on the 1mg Dexamethazone for the time being. 

I suppose this is the next step forwards. Bit gutted by the amount of bone spread especially to my skull as I seem to recall mention of spread to brain from there … 

Anyway, don’t have a lot of choice now. They seemed pretty convinced this was the best next step. 

Think we deserve a glass of wine tonight. 🍷 🙂. 

Cheers everybody, hope all is well with you all ? 

Phil

Hi All.

Just thought id pop by to see how you all are. The spring weather is certainly getting you allotment guys out and busy. Good luck with the growing, even the weeds. We talked about setting some area aside in our last house for some vegetables but it never happened and our new house doesn’t have the same size garden so not going to happen here. Our garden now is very simple and ‘minimalist ’ and so there’s no where to put a veggie patch.

 See my consultant tomorrow so as well as the usual questions I’ll be asking why my heart/lung referral  hasn’t come through. Definitely breathing a bit better now but its not perfect and so id like to know what the situation is and if I can do anything about it. I’m obviously hoping my PSA has stayed down but who knows when im only on the Degarelix and 1mg Dexamethazone. Backs been giving me a bit of jip last few days so well see what the bone scan shows as I didn’t have it done till a day after my last appointment. If it shows more spread in my spine i may have to consider the Radium 223 … I know it’s coming at some time but trying to delay as much as possible..

I think I mentioned on here that we’d cancelled our trip with our oldest to Portugal. Well gutted but I can’t fly … So we booked an exclusive Villa at Center Parcs starting the day the oldest gets back from Portugal, They fly back Monday and instead of flying onto Jersey they are hiring a car and joining us for 5 days. Youngest is also joining us for 1 day and night and the Mother in Law is coming too. Should be fun although can’t see myself doing all the slides etc ….. But we got a sauna room, hot tub and a games room.

So hope you’re all good and keeping busy.

Cheers

Phil