My SRT finished in June 2018, around 14 months ago now. I’ve been on bicalutimide now for almost 18 months.
Two big problems at the moment:
Bowel movements during the night. It’s bad enough having to get up to pee, but now once or twice a night to poo as well. I imagine it’s a delayed result of the SRT.
Fatigue - I’m exhausted. Whilst it would be logical to connect the nightly toilet activities with my tiredness, that’s only a contributory factor. This tiredness is a washed-outness. My arms and legs are sore, I think from muscle wastage. I’m breathless when I get to the top of the stairs. As many of you know, I’m a teacher, so on holiday. I can barely get through a day now so dreading start of term.
Saw my GP yesterday and he’s ordered a lot of different blood tests. He suspects it’s all related to the SRT and HT, but wants to get a more complete picture. I see my oncologist on the 28th and that is when I’m due to stop HT. Just a few weeks to go, but this has not been an easy journey.