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Penile implant

User
Posted 10 Apr 2018 at 16:18
I’m going into hospital for a penile implant in may 2018 after all other treatment have failed after prostate removal would like to hear from anybody who had had the operation for some feed back good or bad : thanks Drayton
User
Posted 07 Feb 2022 at 15:19

Well over two weeks in now. Still sore and uncomfortable but not too much pain. In the main I’ve managed to deal with the pain using over the counter meds although I have used the codeine provided a few times.

Pretty much all of the swelling and bruising have gone now although some of the areas are still quite numb.

I think it was Drayton who reported that day 11 was pretty unpleasant and for me it was day 12?

Fortunately no issues with infection and my scars are healing well.

My penis is quite firm without pumping. Nothing like an erection but certainly not flaccid as before and I think this is just the result of having the stiffer of the Titan implants fitted. 

What has surprised me is the weight of the pump! It really is quite heavy and puts pressure on my scrotum making the underneath of my scrotum really rather sore.

I’ve had no pumping instruction yet. This was booked for week four but has been delayed closer to week six. Obviously I’ve had a feel around the pump and at the moment I’m thinking ’how the hell am I going to be able to do this’ but I’m sure once I’ve been shown and with a bit of practice I will. Due to the soreness maybe week six will be better than four.

Had no contact from UCLH checking on my progress. I guess they assume I will contact them if I have issues.

Many, mainly American, online penile implant videos talk about pulling the pump down repeatedly after week two and even pumping it up and manipulating to prevent scar tissue etc but no such instructions have been given to me.

I’m still off work as I have to be 100% fit in order to return, which I’m expecting will be  4 weeks post surgery.

 

Stay tuned for updates. If anyone wants to DM me feel free.

 

Richard

User
Posted 28 Jun 2021 at 20:27

Hi to all of you thinking of having a  implant I can only speak from my experience , like all of you nervous as it’s irreversible . But as nothing was working I had nothing to loose . I’ve had the three piece fitted a few years now and all has been fine , unless you feel for the pump you don’t know it’s their . And I’ve found the best way to use the pump to inflate is my middle finger and my palm I tried two fingers but it kept slipping out of them . It’s been a complete success for me and my wife . I’m sure their others who might not have been so fortunate , the discomfort is manageable with the help of pain relief in the first few days but it will be Bit tender for a few weeks . If I ever needed it replaced in the future I wouldn’t hesitate . I wish all of you the very best on your journey to getting back to a normal life Drayton 👍🏻👍🏻

User
Posted 18 Apr 2018 at 16:43

Good encouraging post on a procedure that seems rare on the forum. Thanks for that and keep posting. Hats off to you !!
And good luck with it all. Some people never realise just how devastating prostatectomy is to certain people and the issues have to be addressed. Thanks

User
Posted 24 Apr 2018 at 07:05

HI Sandy , I would suggest you try Invicorp25 injections also. Caverject never really worked for me and was agony. Invicorp25 gave me the real deal. Luckily I’m now at the stage 3 yrs post op that I’m considering stopping daily Cialis as my recovery is improving seemingly monthly. Good luck

User
Posted 30 Aug 2018 at 16:05

Hi drayton here I’ll start at the beginningg

as far as the operation itself I’ve read many different stories but this is mine . I was totally impotent so this was my only solution the operation was fine with pain afterwards swelling the usual after such an operation in that region the swelling and pain were pretty uncomfortable so I took tramadol tablets , I had a re visit to learn how to inflate and deflate at 4 weeks but found it to painful so left it for a further 2 weeks by now I was off all pain relief and started to inflate daily a not at a time slowly building up over I would say the next 2 weeks inflating is pretty easy it took me a little bit longer to master the deflateing But now no problem at all as for the feel of it yes when deflated you can feel the tubes at the. Add of the penis where  bends with your natural position but when inflated not at all visually Flaccid or erect it looks no different depending on how hard you pump it up will give you a harder erection  for my wife after 42 years together she did nit wNt me to go through the operation but supported my decision and now 4 months on she so happy for me our life is now back to where it was before my cancer opp is it the same as before the answer is no but it comes in a pretty close second not only physically but also mentally

bottom line was it worth the it pain and all definitely for me yes hope this has been helpful this was my journey I’m sure other people gave different ones but if I was your age I wouldn’t hesitate with you the best what ever you decide 

Drayton

User
Posted 03 Mar 2019 at 11:28

Hi All

Hope all is well.

Awaiting date for surgery for implants, however, getting very anxious and worried about all the "what If's" 

any tips on how to overcome this?

also has anyone had an implant recently? what was your experience and has it improved your intimacy with your partner?

Feel free to PM me is you prefer.

Thanks again to everyone who has guided/helped me get this far.

 

regards

User
Posted 04 Mar 2019 at 01:06

You need to see a urologist who specialises in the treatment of ED.  Implants are only considered, if ALL other treatments don't work for you.  

User
Posted 27 Jul 2019 at 18:44
Hi Xbox

All the best.

I'm still waiting a date.

User
Posted 02 Jan 2022 at 10:42
Amend your post Rich - not allowed to name your medics
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 10 Apr 2018 at 19:00

Drayton, if you put Penile Implants into the search box there is information there

We can't control the winds - but we can adjust our sails
User
Posted 10 Apr 2018 at 19:19

Hi Drayton, there are only a handful of members here that have had it - you might find this useful

https://community.prostatecanceruk.org/posts/t11836-Penile-Implant---Blog-Video#post147463


"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Apr 2018 at 11:36

Got mine 2 weeks ago. Follow up appointment next week to start inflation/deflation, but delighted so far. I'm happy to answer any particular questions insofar as I can at this stage.

User
Posted 11 Apr 2018 at 14:23
Many thanks for your reply s Andrew you sound very positive so that’s a good sign although early days keep me posted if you don’t mind after your follow up drayton
User
Posted 18 Apr 2018 at 15:57
Well I’ve had my follow up now, so I’m “up and running” as it were!

It works as expected and I’ve been cleared for sex in a further 2 weeks’ time (which will be a total of 5 weeks after surgery). Functionally it would be entirely possible right away. At the moment, there is room for improvement in terms of appearance, and I think there is every chance of that, but the operation has certainly given me a penis that works. The pump and the deflation button are quite hard to operate at this stage and require a good deal of strength in the fingers, but I am told that this will get easier with use.

The procedure itself was much less unpleasant and painful than you might assume. I was given painkillers, and used them the first night, but they were not really needed so I discontinued them after that apart from occasional use if I felt a bit sore. I had a catheter which was removed the day after surgery and then I was sent home. I was perfectly able to walk to the nearest London Underground station and take the tube during the rush hour, followed by 90 minutes on a train, if that gives an indication of the low level of discomfort I felt. I had some swelling and tenderness over the days that followed, but nothing too bad at all. (And I am someone who found the aftermath of robotic prostatectomy excruciating in the extreme). The only remaining issue is that the skin of my scrotum is very sore where the pump is pressing on it from the inside, but I had the same problem after my artificial urinary sphincter was fitted last year and that resolved itself within a few weeks so I expect this will be similar.

Drayton - or anyone else - feel free to send me a private message if there’s anything you want to ask that you don’t wish to post on the public forum.

User
Posted 18 Apr 2018 at 16:43

Good encouraging post on a procedure that seems rare on the forum. Thanks for that and keep posting. Hats off to you !!
And good luck with it all. Some people never realise just how devastating prostatectomy is to certain people and the issues have to be addressed. Thanks

User
Posted 22 Apr 2018 at 09:11
Hi it’s drayton thanks for keeping us posted on your progress it seems that so far all going well , which fills me with more confidence I had a biopsy’s in my scrotum many years ago so I am fully aware of discomfort but as they say no pain no gain all going well will be having the implant on may 10th hopefully get my sex life back in track . It’s been pretty dismal over the last 3/1/2 years

So pleased all is going well Andrew keep the posts comming , once my opp is done I’ll kerp you and all imformed if my progress good or bad . Watch this space Drayton

User
Posted 22 Apr 2018 at 09:12
Hi it’s drayton thanks for keeping us posted on your progress it seems that so far all going well , which fills me with more confidence I had a biopsy’s in my scrotum many years ago so I am fully aware of discomfort but as they say no pain no gain all going well will be having the implant on may 10th hopefully get my sex life back in track . It’s been pretty dismal over the last 3/1/2 years

So pleased all is going well Andrew keep the posts comming , once my opp is done I’ll kerp you and all imformed if my progress good or bad . Watch this space Drayton

User
Posted 22 Apr 2018 at 13:46

Good luck Drayton. Hope it all goes well for you and look forward to hearing how you get on.

User
Posted 23 Apr 2018 at 22:41
Hi Andrew.

Do keep us informed of your progress.

I had my prostectomy 3 years ago and since then I've tried tablets, pups and now caverjet injections with no real success. Although pump and caverjet have provided some progress but not enough.

I meet up with my ED nurse next Month for follow and he has suggested the implant so good to hear someone's progress.

Look forward to more.

Cheers

Sandy

User
Posted 24 Apr 2018 at 07:05

HI Sandy , I would suggest you try Invicorp25 injections also. Caverject never really worked for me and was agony. Invicorp25 gave me the real deal. Luckily I’m now at the stage 3 yrs post op that I’m considering stopping daily Cialis as my recovery is improving seemingly monthly. Good luck

User
Posted 15 May 2018 at 06:47
Hi Andrew well this is day 5 after my implant black and blue and sore as I exspected I’m taking pain relief helps take the edge off of it although it’s not an umbarable pain it makes it more comfortable so early days but feeling positive . I’m taking it easy resting with some light walking so so far so good I going to wait until the end off the week before I venture in the shower hope all is going well with your progress it’s not a race best of luck drayton
User
Posted 28 May 2018 at 07:24

Hi it’s drayton well it’s been an adventure the last couple of weeks things took a a turn for the worst in that by day 7 my pain was pretty bad I waited until day 11 and had to get some stronger pain relief also spoke to my nurse at uclh and she postponed my follow up for a week witch is in the 30th may now the 27th things have settled down thankfully just mild discomfort all healing nicely swelling gone only discomfort from the implant as it’s still particially inflated but can now where clothes as I wasnt able to to much pressure . Like my nurse said all operations affect people differently, but I’m now back to my old self and looking forward to my follow up if I’ve been through the worst and the end result is a success it will have been worth every bit of discomfort. I hope Andrew that your progress is comming along nicely is the pump getting any easier to use , most men have said it takes a bit of time to master but I’m sure it will be ok well any info you have to pass on please do so I’ll come back after my follow up appt with more progress news best wishes to all who read this if you are thinking of and implant orhave  just had it done think positive Drayton

User
Posted 31 May 2018 at 07:24

Hi it’s Drayton had my follow up on the 30th all went well now going to be inflating and deflating for the next three weeks having a telephone follow up with clinical nurse saves me going all the way to London things are beginning to settle down still mild discomfort but I’m sure over the the next few weeks that will subside well pleased so far with the outcome nurse said everything feels good and have healed very well no problem with the inflate valve find the deflate a tad more tricky keeps slipping out of of my fingers but I’m sure with practise I’ll get there . How are you getting on Andrew have you mastered the art of the pumps I hope so keep in touch the more we post hopefully it will help other men in our situation . drayton 

User
Posted 03 Jun 2018 at 08:40

Hi Andrew haven’t herd from you in a while is all going ok Drayton 

User
Posted 29 Aug 2018 at 20:17

Hi All,

I've been suffering from ED for about 10 years, brought on by a procedure to treat pyronies. I'm in my 40's.

Over the years have tried all sorts of oral treatment, and injections, nothing has really worked, now I have the option of having implants, would appreciate any advice or information.

 

Please, if you don't mind drop me a private message too, have so many questions that I need answers for.

 

Regards

User
Posted 29 Aug 2018 at 20:46

Hi sorry to hear of Your long running problem

i had an implant earlier this year after prostate cancer four years ago . Like yourself i tried tablets pumps and injections but with limited success. I am now 4 months post op and very pleased to say life is good again , I would be pleased to answer any questions you have at any time , I’m not sure what hospital you will be attending but if it’s uclh Westmorland street your in very good hands so ask away

Drayton

User
Posted 30 Aug 2018 at 01:28

Hi Drayton,

Thanks for your post, I can't send you a private message, any chance you can try sending me one please.

Is it quite easy to inflate/deflate?

Does it look and feel the same.

Can you feel the implants esp the hard tips on either?

If you are in a relationship, how did your partner feel about the implants?

Regards

User
Posted 30 Aug 2018 at 16:05

Hi drayton here I’ll start at the beginningg

as far as the operation itself I’ve read many different stories but this is mine . I was totally impotent so this was my only solution the operation was fine with pain afterwards swelling the usual after such an operation in that region the swelling and pain were pretty uncomfortable so I took tramadol tablets , I had a re visit to learn how to inflate and deflate at 4 weeks but found it to painful so left it for a further 2 weeks by now I was off all pain relief and started to inflate daily a not at a time slowly building up over I would say the next 2 weeks inflating is pretty easy it took me a little bit longer to master the deflateing But now no problem at all as for the feel of it yes when deflated you can feel the tubes at the. Add of the penis where  bends with your natural position but when inflated not at all visually Flaccid or erect it looks no different depending on how hard you pump it up will give you a harder erection  for my wife after 42 years together she did nit wNt me to go through the operation but supported my decision and now 4 months on she so happy for me our life is now back to where it was before my cancer opp is it the same as before the answer is no but it comes in a pretty close second not only physically but also mentally

bottom line was it worth the it pain and all definitely for me yes hope this has been helpful this was my journey I’m sure other people gave different ones but if I was your age I wouldn’t hesitate with you the best what ever you decide 

Drayton

 
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