I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search



Ever Decreasing Circles part three

Posted 17 April 2018 20:56:01(UTC)

Well said, Lyn. Was attempting to think of some encouraging words for Paul, but yours really hit the mark.

Thanked 1 time
Posted 18 April 2018 20:04:06(UTC)
Hi Paul, sorry to read that PSA rising, hope nothing else bad comes out from tests and rise slows. Take care, Kev
Dream like you have forever, live like you only have today
Avatar is northern lights whilst running in Iceland sept 2017
Posted 18 April 2018 20:29:31(UTC)

Best wishes Paul and here's hoping for a Splendiferous Summer !!

We can't control the winds - but we can adjust our sails
Thanked 1 time
Posted 15 May 2018 13:29:03(UTC)

So four weeks on and we have another check up. So the results are in, sort of....the good news is my PSA has stabilised, slightly down at 13.69 so same treatment continues which is excellent. Bone scan reported some progression but oncologist doubts this and has referred it for further analysis. It did not look much different to me. CT scan not been reported back so he is chasing it but hopeful that this will show no change. So not clear cut but present regime retained which was main purpose. So am content.

I have not been feeling well of late but I think these are ancillary problems and the longer enzalutimide is working the better for me as it avoids the next steps. I want to enjoy the weather but still lacking energy so hope I can sort these issues out a bit and make the most of this respite, at least for four weeks anyway.

Posted 15 May 2018 14:15:53(UTC)
Good to see your results are more or less where you hoped they would be and to read that you are content with those results.
Sorry that you are not feeling so good but hoping that things will perk up so that you can get some enjoyment from this spell of fine weather. It has certainly been hot down here in Wiltshire but being a southerner it's not possible for me to function properly in the cold.

All the best

Posted 15 May 2018 16:58:24(UTC)
Good to hear your PSA has stayed roughly the same and you can continue on current treatment Paul.
As Kevan has said I also hope you start to feel a bit better soon and are able to enjoy any decent weather.
Posted 15 May 2018 20:23:32(UTC)

Small victories but victories nonetheless. I hope you feel more zippy soon x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Posted 16 May 2018 09:10:44(UTC)

Well more good news today on two fronts. The hospital phoned this morning. The good news is I was reviewed at the MDT last night and the scans show my disease to be stable. No soft tissue spread and bony mets stable. So that is a good start to the day.

Secondly I seem to have overcome my gastro problems feeling a lot better yesterday and today so hope this continues forward.

Diabetes consultant today so just that one to sort and the summer starts here.

Posted 16 May 2018 10:27:42(UTC)
That’s good news Paul. Out and about from tomorrow then?
Thanked 1 time
Posted 17 May 2018 17:45:06(UTC)

Good news on a couple of fronts. Long may it continue ...

Thanked 1 time
Posted 17 May 2018 17:59:23(UTC)
Good news Paul


"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
Thanked 1 time
©2018 Prostate Cancer UK