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User
Posted 07 Dec 2019 at 10:24

Hello, 

I didn't ever think I would need to do this but here goes, I get my biopsy results next week, I'm very nervous of the outcome, but I'm worrying more for my wife and children, I'm 55 nearly my children are grown up but I can't help but feel the hurt they are trying to hide. 

How do people deal with helping their families. 

Sorry if this is a daft question

But I'm hurting with this thought going through my mind

Regards 

Chris

 

User
Posted 07 Dec 2019 at 13:03

It's most certainly not a daft question. It troubled me, and I went to talk with my Macmillan nurse about it.

What I decided suited me but probably wouldn't suit most people.

I decided that I needed time to come to grips with my diagnosis before I could handle the emotional side of telling anyone else. I could handle myself OK at this stage, but I didn't have the reserve capacity to support someone else having a breakdown on me. So I waited until I had sufficient diagnosis to know my prognosis, and I had learned enough to answer any question I was likely to be asked.

This turned out to be right for me. I know this because after I thought I knew my prognosis and had broken the news to the family, the medics changed their minds and put me back in for more tests. Then I had family calling me the moment I left the consulting room for news, and I couldn't handle that - I really did need time to digest what I'd been told and to look up what some of the procedures were before I was ready to tell other people, so I ended up not saying when my consultations were.

Most people will want the emotional support from a partner in the consulting room, hoping that one of you keeps a sufficiently level head to actually remember what you are told. Maybe you both spend a little time getting that clear in your heads before you tell more people? This really is up to you.

After telling family members (and later friends too), I would occasionally mention it again and even joke about it, really just to make it clear I was happy to talk about it more if they wanted to.

I know it doesn't apply in your case, but when teenage or younger children are involved, Macmillan publish some excellent advice on handling telling children, and what they are likely to understand at each age.

Edited by member 07 Dec 2019 at 13:06  | Reason: Not specified

User
Posted 07 Dec 2019 at 13:11

We waited to decide till after the biopsy result and both Surgeon / Oncology appointments and told only our children once my husband had decided on which treatment he preferred  We waited till after the surgery to tell extended family ie  elderly parents and exwork colleagues by email. 

Now waiting for PSA result 23rd Jan.

We felt it worked for us. We have had a lot of support.  Also alot of advice. 

This forum has been really helpful so far. The nurses are very helpful if you call them.  

 

 

 

Edited by member 07 Dec 2019 at 13:55  | Reason: Not specified

User
Posted 07 Dec 2019 at 13:11

"A journey of a thousand miles begins with a single step" (Dao De Jing) This saying teaches that even the longest and most difficult ventures have a starting point; something which begins with one first step.

Your first step has to be getting the biopsy results. Neither you nor your family can move forward until then.

We have all been where you are and there are no easy answers. However crazy it sounds, try not to think about it until you have more information.

Through worry and speculation lies misery.

If you must contemplate the unknown then look at the “toolkit” which you can find in the “publications” section of the homepage. You can also ring the specialist nurses in the “Get support” area, they are so knowledgeable and helpful.

Good luck and let us know how you get on. We are here in great numbers and with lots of experience.

It was certainly not a daft question!

Phil

User
Posted 07 Dec 2019 at 13:48

Hi Chris,

It's not a daft question. Waiting for the biopsy result seems to go on forever and yes, all sorts of thoughts and scenarios may play out in your mind. Getting those results should hopefully allow you to focus on the next bit, treatment. It may surprise you how much strength you have.

In our case, we didn't tell anyone (apart from a couple of close friends) until after diagnosis when we had decided the treatment plan. Then as we saw it, we had a bad news/good news approach.

As others have mentioned, humour helps and being able to joke about it may not be your thing (it may freak some out at first) but I found it a good ice breaker.

Good luck with the results.

Kev.

 

User
Posted 07 Dec 2019 at 14:20

Hi Chris

Welcome to the website that no one wanted to join. As said before, nothing is really known before the Biopsy results. I have no children but I did take my Wife to the "Results Meeting" at the Urology Dept. It came as quite a shock to me when I heard that I had PCa. In the back of my head I felt that they must be wrong as this should not happen to me. I really did not take it all in, however my Wife did and that was the start of a journey together.

I let friends know about a month after my surgery and most did not really understand. I am quite vocal now to a lot of my Male friends so they get themselves checked out.

Wishing you all the best

User
Posted 07 Dec 2019 at 17:30

Thank you 

User
Posted 07 Dec 2019 at 17:31

Thank you 

User
Posted 07 Dec 2019 at 17:32

Thank you 

User
Posted 07 Dec 2019 at 17:34

Thanks Kev, 

Humour as always been a defensive mechanism for me lol

User
Posted 07 Dec 2019 at 17:35

Thank you

User
Posted 07 Dec 2019 at 20:28

We learned the diagnosis during the festive period, nine years ago, but waited a while to tell our adult children. They accepted it with a bit of shock and now I keep them up to date as treatments change. Some friends know but even now, not all do. We tend to just get on with things as normally as possible. It takes quite a time to absorb the information given and I always attend consultations so that we both know what is going on. Good luck and you will know when the time is right to share with people and especially the children. Even as they grow up there is a tendency to protect them and we only say what we feel they need to know. Some stuff is too personal to share with anyone.

User
Posted 07 Dec 2019 at 20:38
My son knows I have cancer and was there at hospital 4 1/2 yrs ago. He knows I still have it but we just tell him I am having regular tests and medicine to control it and scans to check it hasn’t grown. Sadly I’m just at the start of metastasis now at the age of 52 and he is 9 :-((

Heaven knows how long I may have but 4 yrs would be hopeful I reckon.

User
Posted 07 Dec 2019 at 20:44
I had to tell my eldest daughter about my first TP biopsy because I'm divorced and live alone and the hosp I was seeing at the time did the procedure under general anaesthetic so she had to come and stay with me. I must admit it was nice having her in the know, not having anyone else to talk to. The hardest part was keeping the result from my youngest daughter for eight months because she was doing her A levels at the time. It was a relief to eventually tell her. That said they now both want to come with me for every appt. It's lovely of them to do so because they care for me. But there have been times, most recently when I was given bad news following my latest biopsy, that I would actually rather have been alone. I think I would have been able to process what the consultant was telling me a bit better, and maybe even asked more pertinent questions, if I had not been thinking at the same time of the impact the news might be having on my daughters.

Good luck and all the best anyway

User
Posted 08 Dec 2019 at 06:21

Thank you 

Good luck

 
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