Hi All
I've continued to read and keep up with posts ! I thought I would post an update - my husbands spot on his pelvis is not cancer ...but a fracture from the radiotherapy the Consultant says. His PSA has come down to 0.3 from being on Bicalutamide for 4 weeks. As he doesnt know where the micro mets are SABR is obviously not happening so he's decided to add Apalutamide in with the Bicalutamide rather than go down the chemo route. He said this would be better given my husband is 57yrs and it would have less impact on his quality of life and juggling work.
My husband saw the Consultant in person this time but was only allowed in on his own and he struggled to remember some of what as said not helped by the fact he doesn't really understand much about the various treatments etc as he asks me to google and read so that he doesn't get panicky and stressed and felt quite scared of the side affects of this proposed drug. He did say the Consultant talked about some cancer cells that are killed off by the Apalutamide and said that sometimes some aren't ....and then talked about longevity and some cases going into remission for 10 years or more. He also said that he was told he would stay on this drug whilst the PSA was going down and he tolerated it and chemo is still an option but he'd have to have monthly liver and kidney function tests. So does this mean that he's talking about Hormone Therapy longevity being 10yrs+ or my husbands???!!! Also, I thought I'd read that Apalutamide was used for non-metastatic prostate cancer ...but my husband said "he used the word metastases at one point ..but I dont know what means" - so am I right to assume the Consultant believes he does have micro mets? Sorry for the questions but I've been trying to piece together what my husbands was told - I always prefer when my husband has consultations over the phone as I can sit and listen, understand and explain it later to him when he's forgotten!
Any insight would be gratefully received!!!
Thank you !!!!
Alison