ADT

Hi Jamie,

If you’re like many of us you’ll need a drink whilst on ADT to give you some pleasure. 😩 Hopefully your side effects won’t be too bad, but be prepared for the worst and keep active, do lots of weight bearing exercises to prevent your muscles wasting away.

I was told it was ok to have a drink whilst on ADT, I’m not a big drinker but do like a nice malt and when on holiday, a mojito or two. You might find your hot flushes are worse if you drink alcohol, I normally get one when I have my first drink but after that it’s ok. It sounds like you are a moderate drinker as well so I think you’ll be fine, although during RT it might be an idea to cut back a bit. If in doubt why not ask your CNS?

Most people are on ADT for 3 months before they start RT, I was a lot longer due to circumstances and CT planning issues but it did help my PSA fall from 36 at diagnosis to 1 when RT started.

i wish you all the best on your journey😊

Derek

You always do at least 3 months on ADT before starting radiotherapy - it makes the radiotherapy work better.

Some oncologists prefer 6 months, particularly for the longer ADT treatments. PSA is not often measured again before radiotherapy, although you could ask. It can be good to get it down to 1 or even lower by waiting longer than 3 months if necessary, providing it's still dropping at a good rate. Don't wait if it's not dropping any more.

Thanks All

Although I may have jumped the gun a little :-( Was told yesterday PSMA scan showed large tumour on Pelvis, so its ADT and Chemo for now. Obviously really scared and theres been lots of tears, but I'm fairly fit, still quite young and have no other issues so happy for the best