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Prostate Cancer UK Online Community  »  Search

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At last, my penile implant 158 replies
Penis Implant? 48 replies
Zoladex implant for prostate cancer- possible side effect 3 replies
Implant 12 replies
Travel Insurance with Implanted AUS 0 replies
Penile implant question 2 replies
Which implant should I get? 9 replies
Penile Implant - private vs NHS 2 replies
Non routine penile implant op? 1 replies
Penile implant 81 replies
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User
Posted: 12 Sep 2025 at 10:17

Thank you so much!

An implant is out of the question for many reasons... we don't think highly about any implants in general, no guarantees on the long-term, there is always a chance to ruin even the little you have... and there's the cost...

Unfortunately, we don't have Invicorp available, not even through this online pharmacy which imports medications by order and prescription, only caverject (possible because of some crapy UE regulations).

I have read your posts, also i took the liberty to screenshot some posts with tips about injecting (i apologize if it was wrong)... no need to say we don't have an ED clinic or ED nurse, so our main help comes by internet.

So your opinion is to go for injections... I haven't found any informations if the injections will negatively interfere with the recovery process (...if will ever happen)... but reading your both replies i don't worry about this anymore. 

He had cialis 20mg every other day,  started to have some pain in his legs ... not so good for his job (we have our own business,  but are just the 2 of us and he's the technical one doing the actual work,  I'm only administrator). Because of Rt the doctor recommended not to take it anymore, instead he was using the vacuum pump daily. Also the urologist yesterday was not recommending cialis (i can't buy it without prescription).

We are having fun, open minded about accessories and we communicate well with each other... but also we have an 11yo son in the house (the 20yo one comes only on vacations)...which makes things a little weird, requires planning, preparation... but we manage to enjoy each other. 

I'll order the caverject,  10mg prescribed, and we'll see from there...

I'm not ungrateful,  it was just a routine check up when we discovered the level of psa... i believe we were lucky to find out now, not after 10years... but when each doctor assured us it will be ok,  well ...we were ok, now everything is different. I don't understand why some people and doctors dismiss the sex subject when is so important. Yes, it's important to be alive, but is more important to enjoy life.

Honestly, we feel like we became stronger and closer (if that is even possible for us... we were already that kind of annoying couple who spent most of the time together and does everything together). 

Thank you again ...i really appreciate your messages, boosted my spirit!

Read conversation
    User
    Posted: 12 Sep 2025 at 08:44

    Hi ralu22.

    I'm sorry that you've had to join our club, but welcome to the forum.

    Your English is great.šŸ‘

    There's very little information on here regarding penile implants, but Ulsterman has had one.

    https://community.prostatecanceruk.org/posts/t28232-At-last--my-penile-implant

    From what people have said, it would seem sensible to try penile injections first.

    I've done quote a lot of research on injections and Invicorp seems the best.

    https://community.prostatecanceruk.org/posts/t29845-Hooray-for-Invicorp

    I had non nerve sparing surgery two and a half years ago and since then have never been able to have a natural erection. Invicorp saved my sex life. Give it a go!

    Best of luck. Onwards and upwards. šŸ™‚

    Edited: by member 12 Sep 2025 at 09:03  | Reason: Add link

    Read conversation
      User
      Posted: 11 Sep 2025 at 23:22

      Hello, 

      First I have to thank all of you for sharing your experiences,  it is very helpful, seriously! especially when doctors don't seem to care about this topic... I'm tired of the "you should be grateful " attitude...

      So, my husband, 46yo, was diagnosed with PC in November last year (Gleason7, psa 13.2, no spreading), 8 months ago had a robotic assisted prostatectomy nerves spared. Cialis was prescribed for 3months, unfortunately no erectile effect... this is the only drawback after the surgery. The surgeon said he should be patient and optimistic... Psa dropped to 0.2, then <0.006, but the biopsy was not clean on the cut, so he needed Rt for 30days. 2 months after Rt psa still <0.006, CT ok, blood work ok, the oncologist gave us 6months until next psa. All this time my husband used vacuum pump because all the information we have read here (thank you again! no doctor recommended...feels like stone age!). Mostly for exercising, tried to use constriction rings before releasing the pump, but it gets immediately deflated about 10% and is really difficult to have penetrative sex.

      We kept 1 cialis pill to use 2 months after Rt and had no effect whatsoever. 

      Today (3months from Rt) we went to see an urologist... he told us about caverject and then about implant... my heart dropped... I told him it will be the same cost as the robotic prostatectomy (15000E) and we already made a huge financial effort. He just explained that this is the reason he is not recommending robotic prostatectomy,  better to have a classic procedure and then spend the money on implant... like there is no chance even for partial recovery of erectile function. He gave us a prescription for caverject,  which we can buy only through an online international pharmacy.

      Before I venture to get this injections (private prescription, all medications for ED are not included in the health insurance compensation list in my country) ... I kindly ask you for any advice.

      Are we lying to ourselves thinking that maybe it's too early at 8months from surgery and 3months from Rt to see some recovery? With all the effort and stimulation the natural erection never gets more than 20%.

      My husband is more optimistic than me,  we managed to have ... some kind of sex, a lot of fun, he said that the sensation is more intense than before. However, we would like to regain our life back, at list as much as possible. 

      I have read most of the conversations here since I became a member, but only now I decided to ask you... I'm really frustrated with all the doctors, today i had the ugly feeling that we are customers, not patients ... the surgeon presented the procedure as the best of the best option,  the rt doctor made the Rt sound like spa vacation (no side effects), the urologist proposed the implant as the only solution for the long-term (because of Rt...and maybe because he is doing the procedure)... only the pro's as any good seller...

      I apologize for my long post and for my English, i'm not a native English speaker.

      Thank you all! Any advice is welcomed. 

      Read conversation
        User
        Posted: 19 Aug 2025 at 21:39

        Hi

        My husband was referred to cancer pathway on 3rd July with enlarged lymph nodes and PSA of 648.  T3 N1 M1 a He has had CT scans and biopsy and we have today been told his Gleason score is 5 + 4  He has started hormone treatment and had his first implant of Zoladex last week  

        However we are still awaiting oncology appointment 7 weeks after referral  is this normal  We have two specialist urology nurses who have given us scan results and biopsy results  Is it right that you have to have 3 months of hormone treatment before starting adjuvant therapies 
        Feelng concerned  

        Thanks for reading

         

        Read conversation
          User
          Posted: 15 Jul 2025 at 20:19

          Hey Bryan,

          As others have already said, absolutely nothing to be concerned about in my opinion - a really good start in fact!

          This is definitely the hardest part of choosing brachy - you're going to have to be patient for a good while longer yet unfortunately!

          In the meantime, you should reassure and remind yourself that if you've had a successful implant (which you have), the treatment itself really doesn't fail very often - in my centre, it's literally less than in a couple of percent of patients - so with that on mind and a decreasing PSA, you've got plenty to be positive about šŸ’ŖšŸ‘

          Cheers!

          Paul

          Read conversation
            User
            Posted: 12 Jul 2025 at 18:13
            Re testesterone, I was on Zoladex for 3 yrs with last implant June 2018 or thereabouts. Like you libido was non existent but that was expected along with many other effects. In June 2020, i.e. 2yrs after last implant, my testesterone was 20.4 classed as normal. Not long prior to that I'd say it was still much lower and things seemed to respond quite suddenly. My PSA nadir was 0.5 and has remained there or bit lower since. I was also on 2yrs abiraterone, enzalutimide, prednisolone on trial, p!us 32 sessions RT.

            I obviously dont know if zoladex/prostap etc recovery is at same rate. I do know its been said many times that recovery from HT takes as long as on it; for me that was about right, still suffered tiredness etc (not to same extent)after testosterone normal.

            Peter

            Read conversation
              User
              Posted: 26 Jun 2025 at 14:37

              Hi it's been 15 months sine my last Zoladex implant. I was told the hot flashes were a symptom of the implant and would cease after the implant dissolved (approx. I year). It's well past that now and I've been told since then that they are actually caused by the lack of testosterone in my body. Can anyone please explain what they are, what actually happens to cause them and when I can expect them to stop please?

              Read conversation
                User
                Posted: 12 Jun 2025 at 12:55
                Hi Lesley, I've also had heart surgery (double bypass) in 1995, I'm 66 years old diagnosed in 2015 same as your husband (3+4) and was advised against HIFU treatment by Prof Emberton in 2017 as the cardiac risk outweighed the benefits, now its the other way around, my cardiologist has said that the benefits outweigh the risks, I also have a pacemaker defibrillator which was fitted in 2016 and my concern was that as relugolix interferes with the electrical workings of the heart and as I have an electrical implant what will the effects be on me? to further add to my trepidation I am the first and only patient at the hospital to be given this medication but as I'm already metastatic lets give it a go.

                starting on Tuesday as I have a pre booked family event this weekend and I need to be fit for that :)

                I will keep you posted what side effects (if any) I get, it would be good to know how your husband is getting on.

                Best regards

                Tombone.

                Read conversation
                  User
                  Posted: 06 Jun 2025 at 10:48
                  Sorry I am away from the hose so don't have the score no stage has been said .My psa level was 35.2 the pathway team have been amazing tbo 6 out of the 17 samples showed the cancer .

                  I had the hormone implant yesterday they expect to do radiotherapy at the end of the summer ,just waiting for bone scan now.

                  Read conversation
                    User
                    Posted: 28 Apr 2025 at 20:47

                    I was looking for some advice.  My dad was diagnosed with Prostate cancer in Nov-24.  Gleason score 3+4, PSA greater than 20.  Put on Zoladex - implant 10th Dec.  Early Feb-25 he returned from golf with a feeling like he had stubbed his toe.  To cut a very long story short... His toe then swelled up and has been like this ever since.  When he puts his feet up, the feet look fine (albeit a slightly swollen toe).  But when he stands up, you can see the foot change colour as the blood rushes into the foot and the toe swells a bit more.  It can be painful.  He is now limping.  Oncologists adamant that it has nothing to do with the implant.  He also had gold seeds implanted....  Have anyone else had something similar?

                    Read conversation
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