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Struggling

User
Posted 13 Feb 2018 at 00:18
Hello,

I'd like to share my story in the hope for some help and advice. My husband and I met in 2012 and married in 2014, I am 54 and my husband is 61 now. My husband is a man of few words and finds it hard to express how he feels. I on the other hand, am a great believer in talking and I can not hide how I feel ( I wear my heart on my sleeve and always have).

June 2017 my husband underwent a mapping biopsy of his prostate and two weeks later a prostatectomy and some lymph node removal. Results found cancer in lymph nodes and we were told he will be given zoladex hormone treatment for the rest of his life.

Treatment going well and PSA level great and that's the most important thing.

Since his op he has been urine incontinent but this has got much much better but he still doesn't have full control yet.

His specialist nurse told us from day one that he would have no sexual feeling again and that he would have no desire due to hormone therapy.... we did see someone about ED answers given a pump for my husband to use for a month for his rehabilitation he rarely used it. We have tried to be intimate without having sex but he says it's too intense for him. I felt selfish and kept thinking of what the specialist nurse said about him having no desire. I'm struggling with not taking it personally. My husband says he can remember and still wants me but I don't really know how he feels. I'm finding now if he's not with me I'm thinking he's glad and having a better time.

Sometimes he cries and I think it's the treatment ... I try so hard to get him to talk about his feelings but we always end up getting frustrated and getting nowhere ... Thank you for reading x

User
Posted 13 Feb 2018 at 00:50

Hello Tetsie, I am really sorry to see your post. A man on here once wrote a really moving post about how the HT impacted on him - he described the loss of libido as looking at his wife's lovely bum and feeling just the same as if he was looking at a lump of concrete. What was beautiful about his stories was that it was clear his heart was still full of love for her; it was just the bit of his brain that talks to his genitals that wasn't working.

You know in your heart that it isn't personal, I think and I am sure that he doesn't have a better time without you but it may be that being diagnosed with incurable cancer and worrying about how you will cope when he is gone makes him sad. Some men on here in the past have posted that they worry their wives will want to leave them because they can't have sex.

Lots of men find they are much more emotional on HT; it is the female hormones kicking in I guess. All you can do is keep reassuring him that you live him and that holding hands and being caring towards each other is enough. You may not always feel it is but your situation is unlikely to change and understanding that this is not your fault any more than it is his may give you some peace of mind.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Feb 2018 at 09:12

Hello Tetsie.
As usual Lyn has said it all really.

I just wanted to add that although this site is primarily for men with a man's disease, we wives and partners can also go through the mill and have our low times, especially when we are looking at the rest of our lives like it

IT is no more your husband's fault than a woman's lack of desire and labido is when she goes through her own personal torment with the change It could be that you haven't got to that stage yet being only 54 but if you haven't then your lives will even out. Just like your husband's weepiness with his hormones, so a women gets emotional too at this time. Our hormones control us. Yes for a woman there is the possibility of help with replacement therapy but our men don't have that advantage

I'm sure your husband does love you but he misses what he once had and can only relive through his memories.

PC (like any cancer really) is so unfair because it impacts on other people too.

As he isn't a talker and you are then all I can say is you have to be the one who is patient. He may even see trying to discuss it as added pressure.

Perhaps just one heartfelt conversation to get it out in the open that for you holding hands and cuddling is enough and when you reach for him it isn't because you are trying to instigate intimacy that cannot happen but that it is still a physical loving connection that you can both enjoy.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 13 Feb 2018 at 11:57

Hi Tetsie
I’m Chris J’s wife and I’ve sent you a pm. Good advice from the wise ladies above. This journey is tumultuous and I think the enormity of the emotional fallout takes everyone by surprise. You are continually problem solving. This might be stating the obvious but there are three components I think - you as an individual, your husband as an individual and you both as a couple. Each needs tlc and support for different reasons. Naming and breaking the darker emotions down - fear, grief, panic, sadness, frustration to name a few - can help understanding to forge a way forward as a unit xx

User
Posted 14 Feb 2018 at 00:33
Hi and thank you for your replies which have been most helpful. I felt emotional reading them as it was nice to have some understanding.

My husband and I talked a little today ... Long way to go maybe!

I am unable to reply to private messages as I'm a new member but thank you.

Thank you for your support x

User
Posted 14 Feb 2018 at 09:02

One step at a time Tetsie.

As long as you can communicate in some way then you are half way there.

Just don't let those feelings build up

We can't control the winds - but we can adjust our sails
User
Posted 14 Feb 2018 at 10:48

Hi , my wife tried to PM you with a link to a ladies-only Facebook page for partners whose men have PCa. It’s very popular and you can voice your worries and get sound advice. I’ll ask her to try again. I think it’s only a few days till you can PM.
But please stay on here and voice your concerns. Loads of help available from all. I agree with my wife that the reason we have been so so successful in getting through all this is because we talk everything through with no holds barred. I realise some people aren’t talkers but truly believe it is key to surviving this as a couple. Shyness has to leave the room. Anything hidden hasn’t been addressed xx

User
Posted 15 Feb 2018 at 12:44
Thank you again for your replies.

I shall try to pm your wife again Chris thank you.

T.

 
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