I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Choice

Email this conversation Print this conversation
User
Posted 18 Jul 2025 at 20:29

Hi all.  I am currently waiting to have surgery   I’d like to ask  if anyone who’s had surgery has regretted it and wished they’d opted for another option and viva versa   I am t2n0m0 Gleason 3+4.   Less 10 % pattern 4.  Psa 20.    Thanks all 

User
Posted 18 Jul 2025 at 22:12

Hi Simon,

This recent research suggest from 106 men who'd had RALP, 48% were highly satisfied, 30% had high regrets.

https://pubmed.ncbi.nlm.nih.gov/33359493/

All treatments can have side effects.

You appear to have made the decision to have surgery, it may be counterproductive to question that decision?

Edited by member 19 Jul 2025 at 00:03  | Reason: Additional text

User
Posted 20 Jul 2025 at 21:54

Hi Simon@@

Had Ralp coming up for 4 months ago.

Gleason 3/4, EPC, T3a. N0, M0.

Primary objective cancer control - First PSA <0.01 @ 12 weeks. Histology Negative Margins and still G3/4. So currently on target.

Second Objective continence - currently about 90% continent. Use Tenna 2 when going out. No trampolining though! Again, on target and confident will be ok in next couple of months.

Third objective No ED - surgery was 50% nerve sparing but not even close on this at the moment. Surgery team told me about a year. Everything they have said at the moment OK so I’m not stressing too much.

Lastly no other ongoing side effects. Nothing really to report here thank god other than needing CBT therapy. Get a bit tired still. 

It’s been a tough 3 months but no major regrets thus far.

 

Show Most Thanked Posts
User
Posted 18 Jul 2025 at 22:12

Hi Simon,

This recent research suggest from 106 men who'd had RALP, 48% were highly satisfied, 30% had high regrets.

https://pubmed.ncbi.nlm.nih.gov/33359493/

All treatments can have side effects.

You appear to have made the decision to have surgery, it may be counterproductive to question that decision?

Edited by member 19 Jul 2025 at 00:03  | Reason: Additional text

User
Posted 19 Jul 2025 at 00:03
Bit soon to be regretting a course of action that hasn't happened yet!

I had an RP 10 years ago, I was one of the unlucky 1% that it nearly killed (sepsis), it also made me impotent for 2 years and facilitated my divorce. I still have no regrets!

I do still miss impromptu erections and ejaculation but I am happy with my choices.

User
Posted 19 Jul 2025 at 09:59
I had RT & HT - & have no regrets - some bowel side effects, it happens.

Bit late to change your mind now - but I guess, not impossible.

I chose the least invasive.

User
Posted 20 Jul 2025 at 21:54

Hi Simon@@

Had Ralp coming up for 4 months ago.

Gleason 3/4, EPC, T3a. N0, M0.

Primary objective cancer control - First PSA <0.01 @ 12 weeks. Histology Negative Margins and still G3/4. So currently on target.

Second Objective continence - currently about 90% continent. Use Tenna 2 when going out. No trampolining though! Again, on target and confident will be ok in next couple of months.

Third objective No ED - surgery was 50% nerve sparing but not even close on this at the moment. Surgery team told me about a year. Everything they have said at the moment OK so I’m not stressing too much.

Lastly no other ongoing side effects. Nothing really to report here thank god other than needing CBT therapy. Get a bit tired still. 

It’s been a tough 3 months but no major regrets thus far.

 

User
Posted 22 Jul 2025 at 23:49

5 1/2 years post retzius sparing RARP with NeuroSAFE. No regrets at all and still testing as undetectable. Very stressful leading up to surgery but it was less hassle than having my tonsils out in many respects. When I woke up and walking around the next day I was amazed at how well I felt.

Full continent and able to get good erections. If tired popping a viagra sorts completely. Post histology I was T2c 3+4 50% nerve sparing and very close to breaking out. Negative margins.

 

Edited by member 22 Jul 2025 at 23:53  | Reason: Not specified

User
Posted 23 Jul 2025 at 16:34

Yeah.   In hindsight I agree.  I was always going to go down the surgery route  .  Cheers 

 
Forum Jump  
Email this conversation Print this conversation

Similar Topics

Choice advice by Andrew Chapman
in Localised cancer
T3B SV1 choice of surgery or radiotherapy? by Kimpy
in Localised cancer
Sample Keto choices ? by B Conner
in Diet and lifestyle
Radiotherapy as first choice for younger men by Quite Disturbed
in Younger men
Hospital choice by MagsO
in Advanced or metastatic cancer
So many treatments / choices. HELP by MS58
in Localised cancer
4+3 T3bN1M0 diagnosis facing tricky treatment choice by StevieDee
in Advanced or metastatic cancer
Another difficult choice by Peter D
in Side effects
Treatment choice at 48 and starting my LDR Brachytherapy Journey by Big Stan
in Localised cancer
Treatment -no choices? by Gawain
in Advanced or metastatic cancer
Treatment choice by Poppster
in Start here!
Radiotherapy choices. WPRT or PORT by Elle & Gee
in Side effects
choice of surgery or Radiotherapy by colinb1963
in Localised cancer
PSA rising after 2 months choice of chemo or enzalutimide by searly83
in Advanced or metastatic cancer
So many treatment choices What to do? by David Avon
in Being diagnosed with prostate cancer
Choices choices choices by Grawhar
in Localised cancer
Choices for the newly diagnosed ? by ChrisBromsgrove
in Being diagnosed with prostate cancer
Would you like to nominate an exceptional nurse for our People's Choice Award? by carol.jones
in Get involved with Prostate Cancer UK
Catheter choices by Stozza
in Start here!
Can you change treatment choice? by Gemma.O
in Being diagnosed with prostate cancer
what choice to make by Mkennedy
in Being diagnosed with prostate cancer
What are my choices? by Silkie
in Being diagnosed with prostate cancer
What a choice! by Tim Whitehead
in Localised cancer
Choice of treatment for locally advanced prostate ca. by Gwrtheyrn
in Personal stories
hormone treatment, choice? by Mrs fish
in Localised cancer
Nominate your nurse for our People's Choice Award 2019 by Zoe-Prostate Cancer UK
in Get involved with Prostate Cancer UK
Treatment choices by deano59
in Localised cancer
Glad I made the right choice by Peelie
in Localised cancer
Prostate choices by Mark Palmer
in Localised cancer
Treatment choice process by Dave Quinn
in Localised cancer
Choice RP or HT and RT by John 57
in Localised cancer
Choices by Old King Cole
in Prostate cancer treatment guidelines
Surgery choices by markac_99
in Localised cancer
Choices? by Paul G Shaw
in Being diagnosed with prostate cancer
Third Choice by Paul F64
in Localised cancer
first results after op and choice by Teddyedward
in Localised cancer
Just diagnosed choice of treatment by pinny1952
in Being diagnosed with prostate cancer
Confused by treatment choices by charoinspain
in Localised cancer

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK