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User
Posted 24 Oct 2015 at 20:02
My partner has been diagnosed with prostate cancer, he is 47 he has kind of put it in a box and ignored it is am struggling to cope !! Just any advice xx
User
Posted 24 Oct 2015 at 21:44

Hello Andrea,

Sorry you join us because your partner has been diagnosed with PCa.

It sometimes happens that men find it difficult to accept the diagnosis and perhaps set it aside. It is quite often the partner or offspring who want to look realistically at the diagnosis and learn what is the best way forward. For some men with early diagnosis this may be just mean being monitored. For others beyond this stage, treatment of one sort or another might be considered as being more appropriate.

It would be useful to learn details of the diagnosis as regards PSA, Gleason score and staging and if possible how many cores were taken at biopsy and the percentage of cancer in each core. What did the consultant say about your partner's diagnosis and what were his/her opinions on treatment possibilities?

It would be helpful if you could obtain and post more information and it is a good idea if you or somebody close to him accompanies your partner to consultations because it is easy to miss something that can be significant.

Meanwhile, a good start in learning more about PCa is to obtain the 'Toolkit' which is available by going to the main part of this site.

Edited by member 24 Oct 2015 at 22:47  | Reason: Not specified

Barry
User
Posted 24 Oct 2015 at 22:06
Hi Barry, I don't know all the information. I know his Gleeson score is 7. Consultant recommended a Prostectomy which is happening xmas/Jan time. I will attend all appointments with him just struggling with effects of operation !
User
Posted 24 Oct 2015 at 23:39

Hi Andrea,

What you now say puts a rather different slant on things. If your partner has decided on his treatment and this has been planned for Dec/Jan, perhaps he doesn't wish to be reminded about it/discuss it - his way of dealing with it - which for some could be the best way for them. Having said that, a man about to have a prostatectomy should be well prepared for this. Kegel pelvic exercises and being as fit as possible can help but he (and you) have to be prepared for the potential side effects of the operation, incontinence and erectile dysfunction to varying degrees and from anything from short term to permanent. Follow up monitoring will be required and if the surgery doesn't do the job there may be a need for further treatment, usually radiotherapy, sometimes with hormone therapy.

Hope the surgery goes well and is successful.

Barry
User
Posted 25 Oct 2015 at 07:40

Hi Andrea welcome to the group wish your partner all the best for his for his R/P if this is his choice , had mine last December got as fit as I could before , and all went well with op had RT later but my continence is a 100 percent and i am getting some feeling down below back and feeling fit and well so not all doom and gloom, hope all goes well for you both Andy

User
Posted 25 Oct 2015 at 08:29

Hello Andrea and welcome from me too, wife to another of our PCa men.

Some of our men can only cope (certainly initially) by not thinking about it all too much. Worry about it when it (treatment) happens, but as the others have said it's best to be prepared and to know the possible side effects etc.

If he has already made up his mind (or had it made up for him by the advice of the consultant) then there is little that you or anyone else on here can say that would make him change it.

All you can do is be there for him. If you ask for the toolkit get the hard copies sent to you and leave them where they can be seen. It's possible that even though he doesn't want to discuss it all he may perhaps pick up the Toolkit and flick through it when you aren't there.

The toolkit itself is really useful in giving you, not only information, but also the basis of questions to ask next time he(and you) go to see the consultant.

You know where we are now so if it all gets a bit too much come and have a chat (or a rant - some of us do that and feel better for it !!)

Best Wishes
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 25 Oct 2015 at 08:46
Thanks guys your support is much appreciated. Will get the toolkit and see where it goes x
User
Posted 25 Oct 2015 at 08:49
Hi Andrea,

Another wife here, my husband 46 was diagnosed in May and had prostectomy in July by Da Vinci surgery. He was in pain for about a week after but from then on has being doing really well. He is dry night and day and has just stopped wearing the pads recently (he was only wearing them as he was parinoid he would leak). On the ED front he is starting to have some stirrings down below but not enough to engage in anything yet! He will be seeing the ED nurse next month to be prescribed the pump which some of the men on here have had success with. My philosophy is that he is alive and the cancer is out of his body, he will have a super sensitive PSA done every 3 months and is getting good treatment/advice. All the other things I hope will come back in time. If you go to his appointments take a pen and paper as it is hard to remember everything otherwise, please keep posting and you will always get good advice or just a listening ear here.

Trish xx

User
Posted 25 Oct 2015 at 16:43

Men are funny creatures and if he doesn't want to discuss it, there is only so much you can do.

My advice? Have as much sex as you can (within reason) now so that there can be no angry or regretful words later. The thing I miss most in the world is that lovely lazy morning sex that was never planned. Our surgeon's advice to us was to go off on a holiday and 'do lots of what couples do' but John didn't take the advice because he was a) in too much of a hurry to get the op done asap and b) too convinced that he wouldn't have any problems because he was 'young'.

All is well now but there have been many times in the years after the op when we have regretted that haste and wished that we had made the most of the time when it all still worked.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Nov 2015 at 15:03

Hi Andrea

i was diagnosed in sept 2013. t3, psa 4.6. had da vinci end of october. my tests since have been clear. after 6 weeks i stopped wearing pads, maybe the exercises pre op helped. ED though is still a problem.
i am a regular gym user , going on average 3 times a week and swimming too. my doctor said your recovery will be quick due to your fitness. treat the op as a boxing fight and get ready. so i went nearly every day to the gym or swam.
i had no pain from the op(i really expected some internal pain) except from pain from incisions getting in and out of bed.
my first week i was very tired and drowsy so did little. second week i started walking each day and attended a meeting of local support group.. 3rd week i started driving and went to the gym. i only did some walking on running machine and some simple exercises.(it was quite a few months before i could do anything strenuous!!). but it was just the target of being able to drive to the gym and use it that motivated me and inspired me.
so i always gave myself goals to aim for.
having cancer was a shock as i had no family history and no symptoms. it only came up with an annual blood tests i have. i couldnt understand why i would have it and the first 3 weeks were dreadful. then the more i read about it and the realisation that it had been caught early made me think i could win the battle.
2 years on i am as fit as ever. i am 60 and do everything i did before and more!! i have a warehouse job which involves alot of movement and walk 8 miles per shift.i have just started playing walking football which has given me a new interest and friends.i feel so good.

it is good to take notes at the meeting. my wife did as my mind was all over the place. keep asking questions to doctors and here. my local support group was marvellous. it is good to talk to others who have experience.

good luck with everything

 
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