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User
Posted 08 Apr 2022 at 17:38

Hi Everest90, we saw the oncologist today and asked for a referral to Dr Whatshisname.  Will let you know what the answer is.

User
Posted 08 Apr 2022 at 19:55

Good luck!

User
Posted 09 Apr 2022 at 07:49

Dear Everest 90, thank you very much for the link to UCHL.  Very helpful.  

Hope everything goes well for you

User
Posted 09 Apr 2022 at 10:57

Hi Desperate Housewife.  My pleasure. If OH PC is localised only, then it is definitely worth a referral by your urology dept. All the best. I have contacted "whatshisname" by email and asked if he would refer me to Vitus Germany as my PC is near bladder and Paul says that Vitus have far more experience dealing with this particular area than London and they do refer. Wonder why he didn't refer me? Maybe I will find out! Size of prostate at 99cc possibly but we shall see...

Regards, John.

User
Posted 09 Apr 2022 at 15:13
"Wonder why he didn't refer me?"

Because he has already advised you that it isn't a suitable treatment for your case. He is one of the best in the world- if he says it isn't safe, there is nothing to suggest that a German doctor is going to be able to move your bowel somewhere else for a couple of days. Doctors in the UK are under no obligation to refer you to another country for a treatment they have already explained isn't appropriate.

Paul seems to like raising people's hopes regardless of their diagnosis - perhaps he is on commission... or isn't really a patient called Paul at all and is actually a German clinician trying to drum up some business 🤷‍♀️

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Apr 2022 at 15:41

Hi Lyn...I guess when you have this decease you look for any thing that might be able to sort it. I have taken what Paul said...perhaps he can let us know where he got any further info from. I do know Vitus have been doing this treatment for many yrs prior to the said surgeon. 

Paul?

It's too near the sphincter to the bladder not bowel..

User
Posted 09 Apr 2022 at 15:55

Hi LynnEyre, if that is the case you could contact the German authorities and make a complaint.  They do take things like that very seriously and the Vitus Klinik would be very unhappy because they are relying on their reputation of being a reputable clinic.

User
Posted 09 Apr 2022 at 16:42

I do not wish to get into any conversations on what treatment methods you should accept. I am real and my only aim is to make people aware of a treatment option that appears to have significantly lower side effects and better outcomes than conventional treatments currently offered in the U.K. There are legacy issues and long term data issues which prevent NICE offering on the NHS. It does not however stop patients researching and coming to there own informed decision. 

I won’t dignify giving a response as to my aims and legitimism - unnecessary and offensive   

User
Posted 09 Apr 2022 at 17:06

Hi Paullondon, thank you for your report about your experience with Nanoknife treatment.  

User
Posted 09 Apr 2022 at 17:31

I would never intend to offend you Paul. I am grateful for all your threads on Nanoknife having experienced it yourself.  I have just looked on the surgeon's comments on a page from King Edward V11 hospital (not NHS) and he says " around 20% of men with localised PC benefit from it. It's useful for treatment of anterior tumours which would previously have been hard to treat. However it may not be suitable for all patients as the position of the tumour may mean other treatments are more appropriate" .....20% is a small amount relatively speaking.

Let's see what his reply to me is regarding referral to Vitus.

 

 

User
Posted 10 Apr 2022 at 07:39

I am not sure about this but I think you can contact the Vitus Klinik yourself on international@vitusprostate.com

When I first did research I did and got a general e-mail back telling us what details they needed.

Good luck

 

 

User
Posted 14 Aug 2022 at 14:17

Hi Lynn, what is FLS &SA?

User
Posted 02 Jan 2023 at 14:25
Unfortunately, Everest90 has not got back to us.
Barry
User
Posted 01 Jul 2024 at 16:30

Hello

 

I am new here, any further update on the German Nano knife clinic?

Thanks

User
Posted 01 Jul 2024 at 18:12

Hi my experience at Vitus was good

 

y PSA now dropped from 8 to 0.4

 

its not cheap- ca £ 20k but less invasive and for me  few side effects 

 

User
Posted 01 Jul 2024 at 18:45

Nanoknife is available at UCLH on the NHS for suitable candidates.

I wouldn't be surprised if Imperial did it too.

I have heard some district general hospitals are looking at offering it, but the advantage of the above is they do HIFU and Cryotherapy too, so if one focal treatment isn't suitable or not the best choice in your case, they'll know if another one would be better.

Edited by member 01 Jul 2024 at 18:53  | Reason: Not specified

User
Posted 02 Jul 2024 at 01:50

Another Focal Therapy is Tulsa Pro but I don't think this is available in the UK yet. It is really a variation of HIFU but where the probe is fed through the Ureter rather than through the Rectum so focuses on the tumour from within the Prostate rather than through it. Theoretically, it has several advantages over what is standard HIFU of the Prostate. However, like Nanoknife, log term results will need to be assessed.

https://community.prostatecanceruk.org/posts/t29863-TULSA-PRO

 

Edited by member 02 Jul 2024 at 01:51  | Reason: to highlight link

Barry
 
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